Listen and watch some of the videos from the last TM Symposium and you can get a good education on leisons and TM and MS.
Bob fron Houston-Spring, Tx Para @ T-1, Class of 1994 > [Original Message] > From: Gary and Becky Thomas <[EMAIL PROTECTED]> > To: <[EMAIL PROTECTED]>; <tmic-list@eskimo.com> > Date: 2/13/2006 10:57:01 PM > Subject: Re: [TMIC] TM or MS] > > > Marie, > I guess this is something new to me. I was under the impression that with > TM the brain had no lesions, just the spinal cord. But if you had lesions > on the brain while at Johns Hopkins and they diagnosed you as TM, not MS, > then someone can have lesions on the brain and NOT have MS (except NOW > another Dr. says you HAVE MS!). > I guess I'm confused about the brain lesions! > > Crystal wrote to me, and an MRI DID NOT show lesions on her brain but a > Lumbar Puncture led to a diagnosis of Progressive MS. > > So, I guess one can have MS WITHOUT lesions, and according to your Johns > Hopkins diagnosis, one can have brain lesions WITHOUT MS. ?????? > > Gary in Michigan > > ----- Original Message ----- > From: <[EMAIL PROTECTED]> > To: <tmic-list@eskimo.com> > Sent: Sunday, February 12, 2006 11:50 PM > Subject: [Re: [TMIC] TM or MS] > > > > From: [EMAIL PROTECTED] > > Date: Sun Feb 12 22:34:43 CST 2006 > > To: Deborah Nord Capen <[EMAIL PROTECTED]> > > Subject: Re: Re: [TMIC] TM or MS > > > > Yes, the lesions were there and I have had no real changes in four years?? > > Dr. Pardo saw me four years ago and his diagnosis was TM. > > Thanks for your reply! > > Marie > > > > > >>From: Deborah Nord Capen <[EMAIL PROTECTED]> > >>Date: Sun Feb 12 22:30:11 CST 2006 > >>To: [EMAIL PROTECTED] > >>Subject: Re: [TMIC] TM or MS > > > >>Dear Marie,Did you have these lesions on your brain four years ago when > >>you went to Johns Hopkins?? Or are these new developments?? Johns Hopkins > >>Transverse Myelopathy Center is the only center in the world that has the > >>most knowledge and treats approximately 700 patients (more than any other > >>doctor) with TM.? ?The brain lesions may be something that came on after > >>your initial diagnosis.?Take care,Debbie? ----- Original Message ----- > >>From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, > >>February 12, 2006 8:12 PM Subject: [TMIC] TM or MS > >>Feb. 7th was my 4th year anniversary of having TM... I have come a long > >>way from that night from "hell" when no-one could figure out exactly > >>what was wrong with me... Finally, it was decided TM was the diagnosis. > >>Johns Hopkins agreed with this diagnosis.I take 600mg of neurontin 4 > >>times a day... tho am never without pain.. I now walk with a walker, have > >>hand controls on my car and with my faith and family have adjusted to my > >>new life style. Due to Medicare I had to switch all my doctors. A > >>Neurologist was highly recommened as one of the best in the area. Long > >>story short...after all new MRI's etc... etc.. he informed me that > >>without a doubt I have Multiple Sclerosis. I am still in shock and not > >>sure what is my next step. I have made an appointment with another "top" > >>neurologist in the D.C area..? I have 5 lesions on? my brain which > >>supposedly indicate MS. I am 59 years old. Also my brother -55- was just > >>diagnosed with underlying MS.... > >>Any thoughts, suggestions would be greatly, greatly accepted... Anyone > >>of you with TM have lesions on the brain???? > >>Thanks so much! > >>Marie Arthur > > > > > >
