My lesion was at C3-C4, C4-C5. They tell me it's gone & my
present problems are caused by scar tissue. Which cannot be fixed, without
causing MORE damage
BERNARD
BUTCHER
From: Linda Egli [mailto:[EMAIL PROTECTED]
Sent: Wednesday, September 06, 2006 4:46 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] tm
Sandy
I guess having residual effects on my old lesions means scarring. Dx
was TM & not MS because no lesions showed on the brain & still
don't.
Linda E.
[EMAIL PROTECTED] wrote:
[EMAIL PROTECTED] wrote:
I'm sure you have mentioned this before, but forgive me. I don't have time to read the list in detail since I don't have a computer at home right now. But, why do your doctors think you had Transverse Myelitis rather than have MS? I mean; with 7 lesions showing on your first MRI?? Are your lesions just gone on your second MRI? That's weird! Do you think your first MRI was read incorrectly? Shouldn't some scarring show at least where the others were??Sandy BrassilCharlotte, NC
-----Original Message-----
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Sent: Wed, 6 Sep 2006 3:29 PM
Subject: Re: [TMIC] tm
Linda CI started with 7 lesions from C2 to T5 (per MRI done 4/04). My last MRI (6/06) still showed 1 cervical lesion but I don't what level & residuals from the other lesions (whatever that means).Linda E
L T CHERPESKI <[EMAIL PROTECTED]> wrote:A question to Linda Elgi - your description of how your TM started intrigues me. Do you know where yourlesion is? I have some of those symptoms also, and my lesions are are C4,5&6. And I have had a NEW and even better symptom than all of the others I have - I have shooting pains on the right side of my head, shooting clear over the top almost to my forehead. Have had them about 8 weeks now. Not fun. Neuro not completely sure what is going on - still more testing - the never ending tests. Has anyone else had this happen - the head thing?ThanksLinda C----- Original Message -----From: Krissy ZTo: TM ListSent: Monday, September 04, 2006 2:49 PMSubject: RE: [TMIC] tmMine hit me all at once, in half hours time.Started with a tingly in my low back, and progressed to my legs geting rubbery and falling alseep and that was it...lost both my legs and got rushed to the hosp.
Linda Egli <[EMAIL PROTECTED]> wrote:My symptoms came on over a 6 week period. Started with numbness in hands & feet, moved to arms & legs, then to trunk & chest with banding below my shoulder & thankfully stopped there. Took about 6 months for all this to level out & now left with numbness esp. in hands and feet, fatigue with anything I do, & poor balance. My main problem now is increasing tremors in my right hand & now some in lower jaw (have never heard anyone mention this), but my neuro thinks it is normal.
Jill Z <[EMAIL PROTECTED]> wrote:Mine came on gradually also. I thought it was Cauda Equina Syndrome again like my dr. said the first time 2 yrs ago....
"Butcher, Bernie [S&FS]" <[EMAIL PROTECTED]> wrote:I think mine came on gradually - when I thin back to what happened before I went totally numb, tingly and lame on my left side, there were some instances where I think it may have been my spinal condition: walking wobbly, bumping into things, spilling coffee , klutzy kinda things.BERNARD BUTCHER
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, August 31, 2006 3:35 PM
To: tmic-list@eskimo.com
Subject: [TMIC] tmI notice that every thing refers to acute TM. Has anybody in the group had TM that has come on gradually. Everyone should read the link that Frank sent about GP's. There I guess is nothing we can do about this but we certainly should be informed. At a hospital here in Virginia who employs physicians unless they see patients in an allotted time the physician is asked to leave. Am afraid that this is becoming the norm and is certainly a poor way to practice good medicine.Ann in Virginia
Krissy Zodda
Tri State Support Group Leader
(603)589-1894
http://www.geocities.com/tmladyk/home.html
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