Hello to all,
I have been rather quiet lately, hoping to be
able to write you all and tell you that I have a new diagnosis. But I can't
do that YET! I definitely think it is good to reach out and ask for
everyone's opinions, help and support. And that is what I am doing right
now.
I was diagnosed with TM in June
2005. After what was thought to be 2 or 3 relapses within 1 year,
my neuro thought I might have MS. After a repeat brain MRI and a Vision
Evoked Response Test, which both were negative for MS, he discussed my case with
2 of his colleagues. One said I have MS and to start me on drugs
right away and the other one said I did not have MS and not to start me on
drugs. When I asked my neuro which side of the fence he was on, he said he
liked to know what he was treating and with me he didn't
know.
I went to see Dr. Kerr this
past August. He was very emphatic that I did not have MS
and he thought it was doubtful that I had TM. Since I had
coronary artery bypass surgery about 9 years ago, he was leaning toward
possibly of vascular disease in my back, ie, maybe a blockage in my vessels
in my spine leading to my lower extremities. So...back home I came to have
more testing. He sent a letter to my local doctor, outlining his
suggested test. My local doctor is very slowly going through these
tests. To date, I have had only 2 of them; the ultrasound of the
descending aorta and an MRA of the spine. (I had never heard of an
MRA) Both of which are negative. So the next test is a spinal angiogram.
Has anyone had this performed?
My symptoms began with a slight low back
pain while bending over the bathtub to give my granddaughter a bath.
After that, she went to sleep in her swing, and I napped on the sofa. When
I awoke about 1 hour later, my right leg had an intense needles and pins feeling
from the toes up to the knee. Within in 1 hour, this needles and pins
feeling progressed up to my hip. I went home to bed and the next morning I
could not move my right leg. I had to lift it out of bed. I had only
slight tingling in my left toes and that was all on my left side.
Now 16 months later, my left leg has decreased sensitivity and
slight banding, but I have good muscle control.
I remember complaining to my doctor about a
backache 2 months prior to the onset of this. He ordered an x-ray of my
back, which was negative. I also remember around this same time, my
bottom having a needles and pins feeling when I sat in my office chair. I
just laughed it off thinking I needed to get off my butt and go out and make
some sales calls (to doctors no less). My local doctors said the pain from
giving the baby a bath and these other things have nothing to do with my current
problem, TM or whatever! Oh, one last thing I found interesting. Dr.
Kerr said my spinal tap that I had while in the hospital June 2005 was
negative for TM. So could someone explain why my doctors continued
with a diagnosis of TM?
Carol in Culver, IN
Living in limbo, but sure can't do it!
TM T8-T10 (maybe)
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- Re: [TMIC] Sudden Onset Carol E
- Re: [TMIC] Sudden Onset Terry McLaughlin
- Re: [TMIC] Sudden Onset ROBERT COOK
- Re: [TMIC] Sudden Onset ACAROE