They have my daughter taking an extra 5 mg of Ditropan XL when she goes to bed and it seems to have helped greatly. She takes 10 mg in the morning when she is getting ready to go to school. I also try to limit her drinking before bedtime. Tracey, in PA, mother of 13 year old Ashlee, TM class of '05.
-----Original Message----- From: ROBERT COOK [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 27, 2007 9:22 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: Fw: [TMIC] News And Results! TO HELP CONTROL EXCESS URINE VOLUME AT NIGHT TIME, I DO NOT DRINK FLUIDS AFTER 6:00 P.M.. YOU MIGHT TRY THIS AND BE SURE YOU BLADDER IS EMPTY BEFORE RETIRING. BOB > [Original Message] > From: <[EMAIL PROTECTED]> > To: <tmic-list@eskimo.com> > Date: 3/26/2007 9:37:58 PM > Subject: Re: Fw: [TMIC] News And Results! > > Jude: After getting off the foley catheter, I went to pads and > diapers, and after about a year of that, and a visit to the urologist, > got taught to self-cath, which I didn't have to do all the time, but if I get a UTI, > retention is what happens and I can't void. The doctor says that my > bladder is doing its job: when it fills to a certain point, it empties. > Now that is without any control from my head--or whatever. If I want > to wait, Forget it, cause it's doing its own thing. I'm not sure if > the sacral nerve on the right side is so damaged that it couldn't > respond, but the left was more okay, or what? I'm going to ask the doc on Friday. > Yes, pads and pads, and more pads. I did find out that the Overnight > strength Assurance underwear (aka diapers/pull ups) has an extra > little elastic barrier inside each leg to keep leaks inside. I have > only found that brand and that particular Night time product at > Wal-Mart. I've added two or more Depends Boost pads to that to go most of the night. > > I have found that this works well both night and day to keep outer > clothing dry. I does help one's dignity to know you're not dripping > all over the place! LOL > > The stimulator was described to me as a "pacemaker" for the bladder. > And the doc also said that a particular stimulation level (different > for each patient, I'd guess) kind of removes all the "background > noise" and allows the brain signal--to wait, or to release, etc.--to be heard and > understood by the detrussor muscle--the bladder. This is one of those > things that works or doesn't. And the only way to find out is to try. > But the doc did say that among tm patients, those who can't go > (retention) have the least improvement/success. > > I just know that today I wore panties again, and a pad, and I did have > some leakage, but not like before! A gal my age probably usually > wears a pad in case she sneezes, anyway LOL. > > Cora, still in Baltimore, but yearning for home. > > > > > www.originaltouchofgilly.com > > http://www.oztion.com.au/myauctions/trinketgilly.aspx ----- Original > > Message ----- > > From: [EMAIL PROTECTED] > > To: [EMAIL PROTECTED] > > Sent: Saturday, March 24, 2007 3:09 PM > > Subject: Re: [TMIC] News And Results! > > > > > > Hi Cora, > > > > Gilly, please forward this to Cora for me...I don't have her address > > anymore. Thanks. > > > > Congratulations! Sounds like there is good news from your neck of > > the woods too. Isn't it weird the simple things that make us happy now? > > > > May I ask, because I missed something along the way,,,what did you > > have done and why? I mean, it sounds like you weren't self-cathing > > or something. I could never have gone more than three hours around > > the clock > > before I broke my legs and had this foley put in. Now they don't > > know if > > they can get me off of it. That's why I have a special interest in > > what you had done. > > > > I also have to do digital stimulation of my bowels to have any > > effect and > > sometimes , as you know, it is a whole lot of work and takes > > forever. I am super interested in what kind of stimulator you are talking about. > > > > I woke up from a nap today soaking wet with urine and it went > > through four > > pads. I have dressings on both sides of my butt for pressure sores > > and of > > course they got all wet and I had to take them off. Dave had gone > > to work > > already and I could not get my home nursing to come out and put new > > dressings on, so here I sit, in pain...waiting for Dave to get home. > > It sounds like whatever it is that you have had done is right up my alley! > > > > You hang in there lady and keep enjoying all of your newfound freedom. > > Maybe you'll beat your TM, a little bit at a time. > > > > Peace and Prayers, > > Jude > > > > > > > > > > > > > > ------------------------------------------------------------------------ ---- ---- > > AOL now offers free email to everyone. Find out more about what's > > free from AOL at AOL.com. > >
