There is another interesting thing about my diagnosis. Extensive MRI's, CAT scans, exrays, spinal tap, etc. were done. There were no lesions to be found in my brain or spine. But, in the spinal tap, there was a raised myelin protein level. So, they can't take MS off the table for me yet.
Tim Holder Worship Leader for Celebrate Recovery [EMAIL PROTECTED] (501)224-7171 ext. 1454 Fellowship Bible Church 1901 Napa Valley Drive Little Rock, AR 72212-3913 -----Original Message----- From: Akua [mailto:[EMAIL PROTECTED] Sent: Tuesday, June 12, 2007 5:45 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Allen Rucker on Montel Williams Tuesday June 12 Jim also led me to the brochure, but the original question wasn't mine..... >Hi Akua, You wrote: As to Spreading the Word: mailings? Brochures we >could print out and send to hospitals? Information flyers in pdf form >that people could print out. > >The TMA website already provides a brochure that is already written and is >in the pdf format. Here is the link: >http://myelitis.org/TMA_brochure_2005.pdf > >Join SCI support groups and spread the word of TM. It is treated much like a >SCI once it has moved to the chronic phase. Often times you will come in >contact with folks that have other contacts and you can talk with them. >Look for opportunities at local Universities that have research centers and >talk with them. Attend fundraisers, like the Christopher & Dana Reeve ones >that are held in various cities (search their website) and talk to the >people there. There are many ways to get the word out but we have to be >active, often as individuals, to make it happen. Offer to attend meetings >and educate others on TM. There are tons of ways to make people aware of >TM. What most people want is to really educate the masses and to find a way >to do it quickly. Won't happen, we have to do what we can individually or >working with others who have TM. > >Cindy McLeroy > > > > As to Spreading the Word: mailings? Brochures we could print out and >> send to hospitals? >> Information flyers in pdf form that people could print out? The >> Reeves Foundation was the best source of information with that >> wonderful handbook on SCI.... >> >>> --
