Hi Rob - I can relate. My wife and especially my son - seem to not care
& leave obstacles in my way (I walk with walker only) - I think they do
care, but are equally angry and confused about this as I am - I got
promoted (or demoted) from TM to MS in February '08. before this all
happened, I did Everything - mowed, shoveled snow, fixed cars and
appliances, painted & patched, and played golf (badly), now none of
those.
 
BERNARD BUTCHER
 

________________________________

From: Robert Pall [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, April 16, 2008 8:51 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Misunderstood



        Thanks to all of the group who responded to my question! Other
than a couple of  members who stated that their spouses try their best
to understand, including going to symposiums, reading from the list
etc., most of the others seem to share my frustrations making our loved
ones understand what we go thru 24/7. Many members have gotten divorced
over our condition either because there spouses did not understand or
did not care enough. This to me is both sad and frustrating! I have
tried my best to explain to my wife how difficult my daily life is. She
believes that giving sympathy will make me worse ands she chooses to
treat me normally hoping I will act normally...I usually come close to
her wishes...however there are times when I just need a hug, some
sympathy and most importantly some understanding. I know this will not
happen...therefore I have to come to terms with how I personally will
deal with this. I know I want to stop working, move someplace warm and
spend the rest of my life answering to only myself...this may come to
pass...however deep in my mind I fear being alone. I fear falling and no
one will be there to help pick me up! This is what I must come to term
with.

        As an aside my wife told me that when I started up the New
Jersey support group and started talking to members I tended to feel
worse about myself...I think this is bull but how do you explain to
someone who can't understandand won't even try!

        Thanks for letting me vent again! 

Rob In New Jersey 

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