my care giver was a nurses aide for 21 years ...so she reads all my e mail from the tm web site and has read the about tm itself ...she pretty well knows whwat i going thru and knows i'm about a good as i going to get... i'm very thankful for her careing for me...i have to have a catherter in me the rest of my life because my blatter doesn't operate any more because of tm ----- Original Message ----- From: Jenna To: Butcher, Bernard G (NY80) ; tmic-list@eskimo.com Sent: Wednesday, April 16, 2008 10:21 AM Subject: Re: [TMIC] Misunderstood
Bernie, Keep your spirits up!! We care about you and how you are doing. Jenna ----- Original Message ---- From: "Butcher, Bernard G (NY80)" <[EMAIL PROTECTED]> To: Robert Pall <[EMAIL PROTECTED]>; tmic-list@eskimo.com Sent: Wednesday, April 16, 2008 10:12:19 AM Subject: RE: [TMIC] Misunderstood Hi Rob - I can relate. My wife and especially my son - seem to not care & leave obstacles in my way (I walk with walker only) - I think they do care, but are equally angry and confused about this as I am - I got promoted (or demoted) from TM to MS in February '08. before this all happened, I did Everything - mowed, shoveled snow, fixed cars and appliances, painted & patched, and played golf (badly), now none of those. BERNARD BUTCHER -------------------------------------------------------------------------------- From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 16, 2008 8:51 AM To: tmic-list@eskimo.com Subject: [TMIC] Misunderstood Thanks to all of the group who responded to my question! Other than a couple of members who stated that their spouses try their best to understand, including going to symposiums, reading from the list etc., most of the others seem to share my frustrations making our loved ones understand what we go thru 24/7. Many members have gotten divorced over our condition either because there spouses did not understand or did not care enough. This to me is both sad and frustrating! I have tried my best to explain to my wife how difficult my daily life is. She believes that giving sympathy will make me worse ands she chooses to treat me normally hoping I will act normally…I usually come close to her wishes…however there are times when I just need a hug, some sympathy and most importantly some understanding. I know this will not happen…therefore I have to come to terms with how I personally will deal with this. I know I want to stop working, move someplace warm and spend the rest of my life answering to only myself…this may come to pass…however deep in my mind I fear being alone. I fear falling and no one will be there to help pick me up! This is what I must come to term with. As an aside my wife told me that when I started up the New Jersey support group and started talking to members I tended to feel worse about myself…I think this is bull but how do you explain to someone who can't understandand won't even try! Thanks for letting me vent again! Rob In New Jersey -------------------------------------------------------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
