Hooray, Grace!!!!   I finally got to see your program all of the way through
and you are beautiful, dear one, as is your family!!!!  I am so very proud
of you!

Watching everything right up to the Devic's diagnosis was exactly like
watching what happened to us in the two ER's and hospital plus the rehab!!  

Thank you so much for sharing with us all...j
 
-------Original Message-------
 
From: CANDIS KALLEY
Date: 7/14/2008 10:23:08 PM
To: Jim Lubin;  tmic-list
Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on
Monday.
 
Hey Jim,
Would you be able to upload to YouTube?


Prayers and thoughts for you and yours,
Candy K.

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile,


----- Original Message -----
From: "Jim Lubin" <[EMAIL PROTECTED]>
To: "Grace M." <[EMAIL PROTECTED]>, "jrushton" <[EMAIL PROTECTED]
com>
Cc: "Deb Monteleone" <[EMAIL PROTECTED]>, "tmic" <tmic-list@eskimo.com>
Sent: Monday, July 14, 2008 10:45:55 PM (GMT-0500) America/New_York
Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on
Monday.


Great program Grace!

I recorded it on my computer and cut out the commercials and the other story
 Your segment comes out to 19 mins. I'll burn you a dvd.

You looked fine to me. :-) 

Jim

At 05:31 PM 7/13/2008, Grace M. wrote:

Hi Deb and Jeanne,


 
It's carried by most cable packages and is also on satellite.  It's about
Devic's NMO, which is what caused my TM.  Hope you get to watch.
 
And Jeanne, I look HORRIBLE.  (And I do mean horrible.)  I've never looked
so bad in my entire life, but, I'm very happy to still be alive and kicking.
 So far, the Rituxan infusions have kept me stable, though my May infusion
failed and I had to have an immediate gram repeat.  The neuro thinks that we
might have to do them a bit more often than every three months.  Oh well, if
that's what it takes, that's what it takes. 
 
Gracie 
 
 







  


 
----
Jim Lubin               
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org




 

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