Linda, Heather and I were just talking about our inability to stand with our heads tilted back without loosing our balance.
Patti - Michigan ---- L T CHERPESKI <cherp...@msn.com> wrote: > Heather, > > I haven't given up yet, but I still can't look up at the stars without > almost tipping over. Maybe it will happen one of these nights when I least > expect it. That would be wonderful. > > hugs, > Linda (Eagle, ID) > ----- Original Message ----- > From: Pieter and Heather<mailto:pieterheat...@shaw.ca> > To: L T CHERPESKI<mailto:cherp...@msn.com> ; Trudy > OGILVIE<mailto:mother...@msn.com> ; > balmat...@aol.com<mailto:balmat...@aol.com> ; > tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; > Janice<mailto:jan...@centurytel.net> > Sent: Friday, May 01, 2009 9:58 PM > Subject: Re: [TMIC] RE: wow, you work too hard Trudy > > > Linda, > I know what you mean about shutting your eyes in the shower. It was well > after the 2 yr mark that one day I got out of the shower and it hit me. I > had shut my eyes to wash my hair and I didn't have to touch the wall. From > time to time I still just touch the shower wall or glass door with my elbow > but not like I did for the first few years. (I'm at 5 1/2 yrs now). > So yes I guess little things improve from time to time. > > Heather in Calgary > ----- Original Message ----- > From: L T CHERPESKI<mailto:cherp...@msn.com> > To: Trudy OGILVIE<mailto:mother...@msn.com> ; > balmat...@aol.com<mailto:balmat...@aol.com> ; > tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; > Janice<mailto:jan...@centurytel.net> > Sent: Friday, May 01, 2009 9:33 PM > Subject: Re: [TMIC] RE: wow, you work too hard Trudy > > > Janice, you're so funny. The more questions, the better. Then we all > learn something. About the cathing, > I have had TM for 7 years now and have had to cath from the beginning. > I couldn't "feel" that I had to go so I needed to put myself on a "pee > schedule" Then my doctor sent me to a urologist who worked with people with > neurological issues. She was great - after some testing (just a tad bit > embarrassing) she diagnosed me with neurogenic bladder. In my case, I could > not empty my bladder completely. However, I had a very strange thing happen > about 2 months ago. I had just finished another round of Rituxan infusions > and one day realized that I hadn't cathed! Miracle of all miracles. I still > cath before bed just to make sure I don't need to get up in the night. I > really have stopped thinking there is a "time limit" on this TM stuff. I've > seen small improvements in the last few years that really surprised me. Like > washing my hair in the shower and being able to close my eyes without one > hand on the glass door. Sometimes I still need to hang on or I will lose my > balance, but I could NEVER close my eyes before. Some of these things may > seem small, but when you could not do it for years, it's actually huge. I > hope you and all the rest of us will continue to improve for many years to > come. > > Oh, just one more thing - Janice, nothing is too embarrassing to talk > about here! We've either been there ourselves or know someone who has. So > go for it! > > hugs, > Linda (Eagle, ID) > ----- Original Message ----- > From: Janice<mailto:jan...@centurytel.net> > To: Trudy OGILVIE<mailto:mother...@msn.com> ; > balmat...@aol.com<mailto:balmat...@aol.com> ; > tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> > Sent: Friday, May 01, 2009 6:49 PM > Subject: Re: [TMIC] RE: wow, you work too hard Trudy > > > This is Janice, > As usual, I have another question. How many of you have to cath? > Do you know if that is from having a > catheter in too long when in the hospital, or is it a result of > paralyzation onset taking a long time to come back? Do you still feel > improvement - cathing less, fewer wet pants/pads, more control? Do you wake > up in the nite to an > already wet bed - you don't yet feel when you are peeing until it is > too late? I have not gotten control yet > after almost 2 1/2 years. I am improving, but not there yet. Wonder > if it will ever heal. Just wondered if those > of you that have had TM longer have seen any improvement after the > "2-year mark". Thanks for any responses I > get. I realize this is personal. Janice > ----- Original Message ----- > From: Trudy OGILVIE<mailto:mother...@msn.com> > To: balmat...@aol.com<mailto:balmat...@aol.com> ; > tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> > Sent: Friday, May 01, 2009 3:27 PM > Subject: [TMIC] RE: wow, you work too hard Trudy > > > Hi Barbara, > Congrats on having 3 good nights of sleep! I'll bet you feel like a > whole new person.. I really don't work so hard, I do pace myself and if it > doesn't get done it doesn't get done. I do have someone come in every other > week to help me so I'm fortunate for that. My washing machine broke and I am > now trying to catch up on that disaster. My husband (Mac) is fantastic to me. > It's odd in that seven yrs. ago when this hit we were having some > difficulties.... that all changed when TM came along. Crazy I know..... so > is this damn TM .. only those of you on this list can understand words like > "banding", numbness, > fire and ice..... change your shoes ..... watch out... change your > clothes ..... watch out...... But I am back and committed to doing my > exercises. I do feel much better and a real sense of accomplishment. Again, > so glad you're sleeping, it makes a huge difference. > Take care - Blessings! > Trudy > Springfield, Va (the sun just peeked out - it's supposed to go away > for the weekend. > > > > Worrying does not empty tomorrow of its troubles; > It empties today of its strengths. > > > > > ------------------------------------------------------------------------ > To: mother...@msn.com; tmic-list@eskimo.com > Subject: wow, you work too hard Trudy > Date: Thu, 30 Apr 2009 17:00:22 -0400 > From: balmat...@aol.com > > Hi Trudy, > > You work too hard, I could not clean all day, whether I wanted to or > not. If not for a automatic washer/dryer, the wash would not get done. And, > if it goes for floors, I can do a small amount but not a lot. It kills my > back, and I'm in bed for days. So, it's someone else's job. I do clean the > spots on the kitchen floor iwth paper towels though from time to time, since > hubby or daughter in-law aren't really responsive on the job, lol. It > doesn't seem to be as important to them that it is and looks clean as it is > to me. > > My speed is dusting and cleaning kitchen/bathrooms and laundry. I > can do most things that are off the floor and I cannot do too much in a day > and still manage to cook dinner. I don't cook dinner everyday, but try to do > it most days. Pete (hubby) usually handles breakfast most days and it's a > nice trade off as he loves breakfast. That's one of the good parts of his > retirement. He also makes my coffee in the morning and then again at night. > And, he is sure a handy guy to have around I know that I don't think that I > could have gotten through this whole TM thing without him, he's been so good > at accepting the changes that it has made in our lives. I say accepting, and > I am not sure it is the right word, as it is a hard thing to say. We do have > to accept it, don't have to like it as none of us do, but we just roll with > it. It just is what it is. Can't change it, and cannot deny it anymore, > although I tried that for about 18 months. Now, it's been almost 10 years. > > I use 40 mg Baclofen at night for spasms, and generally it works > pretty well, although there are those nights when it doesn't seem to work. > Maybe it is and if I hadn't taken it, they would be a whole lot worse, but > they definately keep me from sleeping. That is usually on a day that I've > done too much. I've had 2 DVT's in my left leg, and sometimes I think that > the problems and pain in that leg are worse than the complications that TM > has caused in my life. Although, I didn't get the DVT's until I was in the > hospital paralyzed from TM. Darned leg! > > But I have slept 3 nights straight and am a happy camper today. > Yippee! I hope you all can take something positive from me and do something > positive for yourself to get on the right track if you've slipped off as well. > > Hugs to all, Barbara A > > > > > > > > > > ------------------------------------------------------------------------ > Can't afford a new spring wardrobe? Go shopping in your closet > instead<http://www.stylelist.com/spring-fashion/spring-style/shopping-in-your-closet?ncid=emlweusstyl00000001>! > > > > ------------------------------------------------------------------------ > Rediscover Hotmail®: Now available on your iPhone or BlackBerry Check > it > out.<http://windowslive.com/RediscoverHotmail?ocid=TXT_TAGLM_WL_HM_Rediscover_Mobile2_042009>
