Will you people whom do not have  TM along with being  "quads"  please 
create a site of your own  and use it.  You are breaking into a site for people 
who have a  disease called Transverse Myelitis, and unless you have it, I 
feel you  ought not be here because you will never understand the things we 
talk  about.  Some of the topics you will be able to relate to, simply  
because you are paralyzed or have a similar disability, but you ought to  
create a 
site for Quads all of your own.
 
I am sorry for saying these  things.  I wish I didn't feel the way I do.  
Those of you with  Transverse Myelitis, stay...the rest of you, please begin 
your own web  site and do not clutter up the TM Site.  It very well may 
confuse a  person with new TM who needs a place to go to find solace, to vent 
their  anger, to find the exact same people who have the same problems as they 
 do.  
 
This a TRANSVERSE MYELITIS  site...not simply for paraplegics, 
quadriplegics, or people with diseases  similar to ours.  Unless you have 
Transverse 
Myelitis, you do not  belong here.
 
I am sorry that I feel this  way.  I don't even know why I feel so strongly 
about this.  It  seems that I am the only person on our site who feels this 
way since no  once has written in to back me up.
 
Regardless, I feel that you ought  to have your own site and that means 
that it is time for you to create  your own site, and move on.;  Please respect 
our  site.
 
Thank you  quads,
I love you,
Jude...........Wait a minute.  I just went back to see where you had  
addressed your email and it is addressed to a site that is not this  one.  I 
wonder why all of your mail is being sent to out site.?   

Please accept my apology for all  of the things I have said.  I am so 
sorry.  Why didn't one of  you come on board to correct me? 
 
With my deepest  regrets,
Jude, (big  mouth)
 
In a message dated 7/28/2009 3:53:14 P.M. Eastern Daylight Time,  
lilroamin...@verizon.net writes:


Hey Dana  quadriplegics on 35 yrs. I'm only at 10yrs July 31. I, too, have  
been pretty healthy.( I'm a c6-7 quad. I can't stay still for  long plus I 
do get in a manual as often as possible mainly for  excercise and to keep my 
weight down. I went from 205 to 125 now  holding at 130. I've broken my 
right leg 3 times ( shoot almost  can't keep count) LOL Mainly from trying 
things, but if you don't  try, how will you know if you can, right.) For those 
of you who  don't know me.
By the way I'm about to be a  grandma, my daughter is 7 mos and its a girl 
(woohoo) I'm so  excited.
 
Oh Dana by the way What I'm worried  the most about the medicare/medicaid 
is they  (government)want to stop in-home care.
One thing I have heard is The  Governor of Texas is really looking into the 
healthcare, like he  did the stimulus thing. He didn't take all the money 
only enough  to help the unemployment and welfare n few other things. What I  
don't understand with the Healthcare is with its hard enough with  getting 
things with medicare/ medicaid I hope and pray they  don't screw it up worse.
 
Regina

Life's greatest  accomplishments are those that at first seem impossible and
No  one can know what they can do until they try.

--- On  Mon, 7/27/09, dav...@aol.com <dav...@aol.com>  wrote:



From:  dav...@aol.com <dav...@aol.com>
Subject: Re: [QUAD-L]  35 year anniversary
To: quad-l...@eskimo.com
Date: Monday,  July 27, 2009, 10:25 AM


congrats on being a tuff ol' goat  DAANO.  I've  had only one close call 
with a uti -  I've been unusually  healthy since 5-24-1967.  yupper 42 years.  
(I had to  think for a minute of the exact date - that's gotta tell you  
something )  looks like this sci stuff isn't nearly as  deadly as one might 
think.
azdave
 
Young people  talk of the future because they have no past, 
while old  people talk of the past because they have no future. 
_Dave & Patty's Grandkids_ (http://ocgrands.com/)   

 
In a message dated 7/27/2009 7:28:02 A.M. US Mountain  Standard Time, 
daa...@aol.com writes:

I can't believe I made it to my 35 th year  anniversary.  My parents were 
told after each  hospitalization I might not make.  It seems I was strong  
enough to defeat their predictions even though I appeared to  be weak at the 
time.  I was given a tracheostomy after  each of my surgeries, but it was 
removed before I came  home.  I had so many long hospitalizations trying to get 
 off the ventilator and over pneumonia.  I was given  another tracheostomy 
during a pneumonia in 88, which they  changed to a trach button before I 
left the  hospital.  It has  kept me out of the hospital  except for a UTI that 
got into my bloodstream causing a coma  for 13 days.  I had a  pneumonia 
last year.   The trach buttonallows me to get over the bronchitis at  home.  I 
didn't want it, but it turned out to be a good  thing for me and not very 
noticeable.  It is mostly  capped, unless I have a lot allergies or 
congestion and might  need suctioned as needed.  It is easy for anyone to learn 
 how 
to do.  I am quite healthy almost all of the  time.  I love to enjoy life 
going to concerts, which is  one of my favorite things to do.  Sorry this has 
been  such a lengthy post.
 
I have forgotten, who has the longest survivor that we  know of.  They had 
saved that information, but have lost  when this computer was reformatted 
and my brother thought  he had saved.
 
I haven't got a lot of posts this summer, and I'm sure  everybody is busy.  
Just wanted to say I miss those that  I have not heard from.
 
What does everybody think about the new health-care bill  as nobody has 
mentioned.  I know that is a political  issue, but very important for our 
ability to survive and get  what we need.  There has been talk about taking 
away 
from  Medicare.  Medicaid is also having problems with reduced  state 
revenue for problems.  Kansas has mentioned there  will be some reductions with 
populations such as ours, but I  don't know where it will be targeted.  PCA 
hourly pay is  very low and hard to find people that want to work with no  
increases at all for a number of years.  
 
Just wondering!
 
 
 
  .
 
 
 
 

 
____________________________________





 
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