Laurie,
The informative messages - sharing what meds work for what ailment, ways to
make situations easier, etc., is a very important part of this website. The
personal messages are just as important. When you get a disease like this,
it is not unusual to feel isolated
because of the rarity of the disease. It is important for moral as well as
feeling a certain belonging to people that
can relate to what you are going through with this disease. There is a
great deal of depression that is part of TM and there is a need to communicate
with others who may be able to help. Friendships made here are valued and
just as
important as sharing information. I hope you will join in with your comments
and tips for easier living.
Janice
----- Original Message -----
From: Laurie Zissimos
To: heyjude48...@aol.com ; TMIC-List@eskimo.com
Sent: Saturday, August 01, 2009 9:02 AM
Subject: Re: [TMIC] Re: [QUAD-L] 35 year anniversary
Heyjude - I've only been a TM for 3 yrs and have been reading the emails for
a couple of weeks deciding whether or not I want to join in. I've been quite
surprised by some of the things I've read and applaud you even though you were
slightly off point. Maybe someone can tell me what I am missing because so far
this site seems like a fraternity with way too many personal messages clogging
up the email cyber waves. Curious? lz
-----Original Message-----
From: heyjude48...@aol.com
To: lilroamin...@verizon.net; TMIC-List@eskimo.com
Sent: Sat, Aug 1, 2009 1:05 am
Subject: [TMIC] Re: [QUAD-L] 35 year anniversary
Will you people whom do not have TM along with being "quads" please
create a site of your own and use it. You are breaking into a site for people
who have a disease called Transverse Myelitis, and unless you have it, I feel
you ought not be here because you will never understand the things we talk
about. Some of the topics you will be able to relate to, simply because you
are paralyzed or have a similar disability, but you ought to create a site for
Quads all of your own.
I am sorry for saying these things. I wish I didn't feel the way I do.
Those of you with Transverse Myelitis, stay...the rest of you, please begin
your own web site and do not clutter up the TM Site. It very well may confuse
a person with new TM who needs a place to go to find solace, to vent their
anger, to find the exact same people who have the same problems as they do.
This a TRANSVERSE MYELITIS site...not simply for paraplegics,
quadriplegics, or people with diseases similar to ours. Unless you have
Transverse Myelitis, you do not belong here.
I am sorry that I feel this way. I don't even know why I feel so
strongly about this. It seems that I am the only person on our site who feels
this way since no once has written in to back me up.
Regardless, I feel that you ought to have your own site and that means
that it is time for you to create your own site, and move on.; Please respect
our site.
Thank you quads,
I love you,
Jude...........Wait a minute. I just went back to see where you had
addressed your email and it is addressed to a site that is not this one. I
wonder why all of your mail is being sent to out site.?
Please accept my apology for all of the things I have said. I am so
sorry. Why didn't one of you come on board to correct me?
With my deepest regrets,
Jude, (big mouth)
In a message dated 7/28/2009 3:53:14 P.M. Eastern Daylight Time,
lilroamin...@verizon.net writes:
Hey Dana quadriplegics on 35 yrs. I'm only at 10yrs July 31. I,
too, have been pretty healthy.( I'm a c6-7 quad. I can't stay still for long
plus I do get in a manual as often as possible mainly for excercise and to keep
my weight down. I went from 205 to 125 now holding at 130. I've broken my right
leg 3 times ( shoot almost can't keep count) LOL Mainly from trying things, but
if you don't try, how will you know if you can, right.) For those of you who
don't know me.
By the way I'm about to be a grandma, my daughter is 7 mos and
its a girl (woohoo) I'm so excited.
Oh Dana by the way What I'm worried the most about the
medicare/medicaid is they (government)want to stop in-home care.
One thing I have heard is The Governor of Texas is really
looking into the healthcare, like he did the stimulus thing. He didn't take all
the money only enough to help the unemployment and welfare n few other things.
What I don't understand with the Healthcare is with its hard enough with
getting things with medicare/ medicaid I hope and pray they don't screw it up
worse.
Regina
Life's greatest accomplishments are those that at first seem
impossible and
No one can know what they can do until they try.
--- On Mon, 7/27/09, dav...@aol.com <dav...@aol.com> wrote:
From: dav...@aol.com <dav...@aol.com>
Subject: Re: [QUAD-L] 35 year anniversary
To: quad-l...@eskimo.com
Date: Monday, July 27, 2009, 10:25 AM
congrats on being a tuff ol' goat DAANO. I've had only one
close call with a uti - I've been unusually healthy since 5-24-1967. yupper
42 years. (I had to think for a minute of the exact date - that's gotta tell
you something ) looks like this sci stuff isn't nearly as deadly as one might
think.
azdave
Young people talk of the future because they have no past,
while old people talk of the past because they have no
future.
Dave & Patty's Grandkids
In a message dated 7/27/2009 7:28:02 A.M. US Mountain
Standard Time, daa...@aol.com writes:
I can't believe I made it to my 35 th year anniversary. My
parents were told after each hospitalization I might not make. It seems I was
strong enough to defeat their predictions even though I appeared to be weak at
the time. I was given a tracheostomy after each of my surgeries, but it was
removed before I came home. I had so many long hospitalizations trying to get
off the ventilator and over pneumonia. I was given another tracheostomy during
a pneumonia in 88, which they changed to a trach button before I left the
hospital. It has kept me out of the hospital except for a UTI that got into
my bloodstream causing a coma for 13 days. I had a pneumonia last year. The
trach buttonallows me to get over the bronchitis at home. I didn't want it,
but it turned out to be a good thing for me and not very noticeable. It is
mostly capped, unless I have a lot allergies or congestion and might need
suctioned as needed. It is easy for anyone to learn how to do. I am quite
healthy almost all of the time. I love to enjoy life going to concerts, which
is one of my favorite things to do. Sorry this has been such a lengthy post.
I have forgotten, who has the longest survivor that we know
of. They had saved that information, but have lost when this computer was
reformatted and my brother thought he had saved.
I haven't got a lot of posts this summer, and I'm sure
everybody is busy. Just wanted to say I miss those that I have not heard from.
What does everybody think about the new health-care bill as
nobody has mentioned. I know that is a political issue, but very important for
our ability to survive and get what we need. There has been talk about taking
away from Medicare. Medicaid is also having problems with reduced state
revenue for problems. Kansas has mentioned there will be some reductions with
populations such as ours, but I don't know where it will be targeted. PCA
hourly pay is very low and hard to find people that want to work with no
increases at all for a number of years.
Just wondering!
.
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