Kevin, You have described my sensations closer than anyone else. The weather does not seem to bother me. What is much worse is over doing activities on a day I feel really good and then paying for it the next day. My tailbone also feels much like yours. Whats up with that? I can not lay flat on my back with my legs flat-it causes spasms. Well, I am a mess and my husband has decided that we are never going to figure out my body, so we are just going to cope with it. Good luck with your body! Janice
From: kevin weilacher Sent: Sunday, December 20, 2009 8:17 AM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Nerve Pain Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..? Short answer....yes. Kevin Weilacher N.E. Ohio (Canton) -------------------------------------------------------------------------------- From: Janice Nichols <jan...@centurytel.net> To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected? Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
