So, my doctor called from John Hopkins Hospital and he says that I don't have transverse myelitis. Now he says that I have acute disseminated encephalomyelitis. I had my attack in August of 08 and now I don't know what to think. My neurologist here says that it is just a case of transverse myelitis. None of my brain MRIs have shown swelling. The first MRI showed a couple of white spots, and the one I had done in December said that it looked better. I had a biopsy done because they did a CAT scan of my chest and they thought there were granulomas but when they did do the biopsy it came back normal he said there were no granulomas the only side effect I have is the swelling in my spine so I don't understand how he can say that I have acute disseminated encephalomyelitis. Every time they run tests they come back normal blood work, CT scan, and biopsy. My MRIs of my spine still look the same, but none of the reports from the brain MRIs (the original or the recent MRI) have said anything about being abnormal. Local neurologist says my brain MRIs are clean even one when I had my attack this makes no sense. Any advice?
