Dear Friends,
Last night I had a couple of bad episodes. Pain spasms running from my skull to
my inflammed spine down to my right leg. The neuro-electric shocks lasted a few
minutes each time, sometimes 10 minutes. I was treated with several drugs
intraveniously, but valium finally did the trick in a large dosage. I have this
onset of the TM recurrence and for the life of me, I can't figure out why?
Maybe I tried to rush back to work too early last time, or maybe I just
pretended to be normal when I clearly wasn't. Maybe I should have not lied when
I kept telling people "I'm fine".
Now, I had my doctors up all night doing research, all 10 of them, this is some
of the material they gave me:
1. http://fairfield.freehosting.net/97sept/tm-research.html
2. http://www.myelitis.org/abouttma.htm (these are you, my friends!....they
laughed because I always told my doctors about you guys)
3.
http://www.behind-the-tm-facade.org/transcendental_meditation-tmresearch-problems.htm
So, if you're up to having a read, please cut and paste each in a browser.
I literally just did an ECG and I am hooked up to a automated "dripper
machine", Fentanil, Ringers and another drip that is unfortunately in code so I
can't tell what it is. I also have an automated blood pressure kit attached to
my right arm that comes on every 50 minutes. I'm on a 5 point (chest) Dixtal
Monitor Portal for heart complications (last time my heart stopped for a minute
and 47 seconds) as well.
A catherter has also been inserted now for 4 days, so I can't wait to start
educating it (clamp and release every 3 hours).
No bowel movement for 5 days, which in itself is nonsense because as I remember
3 days was pushing the envelop of danger. So, I preparing now for an enema.
I'm back on high dose cortisone for 7 days, weaning off slowly after that, so
let's see if it works this time.
The big worry is my right leg as i have a motion/force scale of 2, with
inability to stand and lean on it when sitting, which causes pain scale 10 on
my herniated discs. One of these discs being responsible for my inability to
urinate.
I am going to listen to you Rob as well as all you TMers. I lucky to have you
and even luckier to have the kind of wife to get me through all this once
again.
Thanks for always listening,
Yours,
Jeron
From: jan...@centurytel.net
To: rp...@neillsupply.com; rumc...@hotmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Hospital
Date: Wed, 24 Mar 2010 22:00:08 -0500
Jeron,
Listen to Rob, he is right that there is
absolutely NO blame that can be put on ourselves for TM or recurrences of
it. Just do as the doc's say and remember
that you got better the first time and you will
improve again the second time. Just
remember you have all of us here wanting you to get better, which you will with
time and, assuming, therapy. Remember, we have all had
our times of being really scared and wondering
what the future will bring, but you need to ask your family for strong support
and help to get you through this. With your
strength and faith, your TM family will help you get through this as well as
your biological family. Please
keep us informed of your progress on good days
and your mindset on bad days. Hopefully we can
help.
Janice
From: Robert Pall
Sent: Wednesday, March 24, 2010 2:43 PM
To: j
ra ; Transverse Myelytis
Subject: RE: [TMIC] Hospital
Jeron:
I know you are terrified and I don't blame you....but
please remember you are not alone. When did you have your first onset? What
tests did the Dr. give you in determining his diagnosis? How old are you? And
finally how are they presently treating you (are they giving you steroids?).
Keep your head up....things will get better!
All the best!
Rob in New Jersey
From: j ra [mailto:rumc...@hotmail.com]
Sent: Wednesday, March 24, 2010 3:10 PM
To: Transverse
Myelytis
Subject: RE: [TMIC] Hospital
Good day my friends,
Got some bad news today. I returned to the
hospital a couple of days ago because I was feeling some pain and with TM,
precaution is imperative.
My neurologist just confirmed recurrent TM. I was
doing so good, I was doing everything right, why me?
I hate this, I have to
start all over again. I am scared. I don't know what to do. My wife is
terrified
and my family is traumatised and it is all my fault......
help me
please...
Jeron
Date: Tue, 23 Mar 2010 11:32:11 -0700
From:
toddtm2...@sbcglobal.net
Subject: RE: [TMIC] Hospital
To:
rumc...@hotmail.com
Hey
Jeron,
Sorry to hear that
you're in the hospital.
Herniated discs is
got to be very painful on top of TM.
The drop foot will
get better with exercises and the
pin & needle will
get better with drugs. lol
Please keep us
updated on your stay hospital.
We are thinking
of you,
Todd in Corpus
Christi, TX
--- On Tue, 3/23/10, j ra
<rumc...@hotmail.com> wrote:
From:
j ra <rumc...@hotmail.com>
Subject: RE: [TMIC] Children
To:
jan...@centurytel.net, pieterheat...@shaw.ca, "Transverse Myelytis"
<tmic-list@eskimo.com>
Date: Tuesday, March 23, 2010, 3:14
AM
Hey all,
Firstly, I'm in the hospital again for more treatments
(severe back pain due to herniated discs and
dragging right leg, pins and needles etc). I asked Prof. Ivan about
the connection and he disagrees based on many things he
started to explain that I may have been too drugged up to understand.
So, I asked him for medical journals on said topic and he reckons he
has
got some. I will get back to you on this.
Also, stem cell
research is still probably the only help for TMers with chronic pain
and
disabilities directly attributed to TM and MS.
my 2 cents at 4
am at Clinica Sao Vincente Gavea, Rio de Janeiro,
Brasil
Jeron
From: jan...@centurytel.net
To: pieterheat...@shaw.ca;
tmic-list@eskimo.com
Subject: Re: [TMIC] Children
Date: Mon, 22
Mar 2010 22:30:22 -0500
Jeepers! You do have a lot of
autoimmune illnesses in your family. Kind of
scary.
I really don't understand insurance companies. They would
be
really happy if they only had to insure very
healthy people that have no accidents of any kind.
What a crock.
Janice
From: Pieter and Heather
Sent: Sunday, March 21, 2010 12:57 PM
To: Janice Nichols ; tmic-list@eskimo.com
Subject: Re: [TMIC] Children
Janice,
I'm not sure about TM being passed on.
However, there are a lot of autoimmune
illnesses in my immediate family.
I'm eldest of 3 girls (I'm going on
65).
My father had rheumtoild arthritis.
My sister 3 yrs younger has MS (was
diagnosed in 1991 but figures she had it much longer)
My sister 7 yrs younger was diagnosed with
Ulcerative Colitis at age 19 and had large bowel and rectum removed
then.
My daughter has none of the above.
However, this past year she signed up for extra medical insurance
coverage and was denied MS coverage should she get it in the
future. She had to include on her application any illnesses in her
immediate family, mother, father, sibling. She had to declare that
I have TM. So that tells me that insurance companies anyway figure
there
could be a connection.
Heather in Calgary
-----
Original Message -----
From:
Janice Nichols
To:
tmic-list@eskimo.com
Sent:
Sunday, March 21, 2010 6:29 AM
Subject:
[TMIC] Children
Good Morning. It
is the first day of SPRING!!!!!
I have a question for you "smarter than me"
TM'ers.
In the future, do we have any information on
chances for our children ending up with TM also?
Janice
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