Hi Everyone,
Well, I was reluctantly admitted to the TM group last week. My name is Kelly
Jean and I am 28 years old. I am a cancer research scientist, athlete, wife and
pug lover.
I was diagnosed after a strange string of events. I woke up two weeks ago with
a coughing episode that left me feeling like there was a constrictive band
around my chest. I thought I was having a heart attack. The ER visit left me
feeling better after they gave me a Toradol injection in the left cheek .
However, the next morning my toes felt numb and tingly on the injection side.
As the day went on I noticed, the numbness and sensitivity was growing. By the
next day, I couldn't stand to touch myself on the left leg. The worst
pins/needles sensation you could imagine. Myy husband, splashed water on my leg
near the garden and I fell down in pain. It was like someone poured liquid
nitrogen down my body. I received my PhD studying a movement disorder
(Parkinson disease), so I thought this could be peripheral neuropathy. I just
knew that the nurse who gave my that Toradol injection damaged by nerves and I
was having sensory neuron damage...little did I
know.
After 5 doctor visits and everyone saying these sensations would pass, I
finally convinced another ER doc to give me an MRI. Almost 10 days later, they
found a T3 lesion on my spinal column and 2 small lesions in my brain. They
admitted me to the hospital and began my solumedrol treatments 1000mg/day x 5
days. The solumedrol nearly incapacitated me. I couldn't walk, lift my head,
speak or chew. I was release from the hospital and I am just now on day 2 of my
oral taper prednisone doses. I still feel like I am in a fog. My abdomen feels
like a tons of bricks. After nearly two weeks of bed rest, I am feeling
crippled physically and emotionally.
My head aches just after sitting up for a few minutes. Does anyone else have
this sort of reaction to the steroids? They did a lumbar puncture and we are
awaiting the CSF lab results to rule out MS. Perhaps, the puncture hasn't fully
healed yet. The doctors are guessing this was an infectious case of TM. I am
praying that this is a monophasic event and this suffering will soon be over.
Does anyone have any suggestions? Massage therapy? Physical therapy?
Acupuncture? Reflexology? Homeopathic meds? I am desperate to be better. Any
and all advice is welcomed.
Sorry if this email seems to dance all over the place. Typing and reading this
email has tuckered me out today.
Thanks for your support,
Kelly Jean
--- On Mon, 5/31/10, Akua <a...@artfarm.com> wrote:
From: Akua <a...@artfarm.com>
Subject: Re: [TMIC] Shoes
To: "Cody" <c...@austin.rr.com>, tmic-list@eskimo.com
Date: Monday, May 31, 2010, 7:48 PM
I wear hose and crocks and remind myself to turn my feet -- was getting a
pressure sore on the side of my left foot from it laying on the side of foot
rest
went back to strapping feet in boots at night for a few nights
> I am having a terrible time with pressures sores on my feet. I am interested
> in hearing what kind of shoes those of you who have to use wheelchairs are
> wearing. My problem is my left foot turns inward and lays on my footrest on
> its left side. And that's where the pressure sore is located on the ball of
> my foot just behind my little toe. My wife just bought me a pair of ankle
> high boots which hopefully will tend to keep my foot straight with the ankle
> support. I have been wearing regular tennis shoes. I would be interested in
> what others are doing for shoes. The podiatrist put me in one of the boots
> with velcro they use when you have foot surgery. Because it has high ankle
> support it has tended to keep my foot straighter...Cody in Austin
--
