I dont know if you have applied for disabled social scurity or not but here is
a link with some helpful info:
http://www.myelitis.org/resources/disabilityapp.htm
I went to www.socialsecurity.gov and done the online thing and called them and
they gave me a number of a person that I can work with to get this rolling and
keep me informed along the way.
some people are fortunate enough to get benefits the next month but the normal
wait time is 5 months. some have said that it took them over 2 years to get it.
you know how it is working with uncle Sam.
remember he is our uncle,not our Daddy.
did i say that!
John from WV
--- On Mon, 11/1/10, PAMELA S <subers...@msn.com> wrote:
From: PAMELA S <subers...@msn.com>
Subject: [TMIC] Hello all, about me
To: "TMC Group" <tmic-list@eskimo.com>
Date: Monday, November 1, 2010, 2:50 PM
Hello John; In answer to your question, I was diagnosed in 1992 with pretty
good recovery except a straight catheter and extreme fatigue with any viral
infection. A few years ago I started getting weaker. In 2000 I had trouble
with BIH from the high protein in my spinal fluid. Now all of the sudden I'm
weak as a kitten and can hardly get around. The initial hit was between my
shoulder blades. My arms weren't effected at first, but they now are. I've
continued to work with intermittant leave until last August. This they call
Latent TM. I was told in the beginning, once I got well, it would probably
stay away. I still have the feeling that there is a fist gripping between my
shoulder blades frequently, but the weakness is worse than it's ever been. I'm
barely walking, but I am walking. I fall alot. Since 1992 some doctors have
learned about tm but many I've used have no idea. I was actually laughed at
once for the burning
sensation. I said give me a felt marker. I'll mark where it burns, and you
will find a dermatone diagram standing in front of you. My biggest issue now
is how to adjust to disability. I still have a mortgage over my head. I am a
nurse who was working 12 hour shifts on her feet. My only problem was young
nurses making fun when a foot dragged or I seemed to be tiring out. Today, I
barely make it to 2 in the afternoon before it hurts to hold my head up. PT
kills me. The tiniest exercizes and I can't do anything for 2 days without
pain. Somehow this doesn't feel latent to me. I need all the advice I can
get, especially on disability issues and lifestyle transitions.
