Hi, Pamela, and welcome to the group. Sorry about the circumstances, but we are here
for you. I have never heard of "Latent TM". Also can't believe that the doc's can't
come up with something to strengthen you. I can't imagine working as a nurse and dealing
with TM - you must be stronger than you think. I wish you the best and keep posting
in.
Janice
Quoting PAMELA S
Hello John; In answer to your question, I was diagnosed in 1992 with pretty good recovery except a straight catheter and extreme fatigue with any viral infection. A few years ago I started getting weaker. In 2000 I had trouble with BIH from the high protein in my spinal fluid. Now all of the sudden I'm weak as a kitten and can hardly get around. The initial hit was between my shoulder blades. My arms weren't effected at first, but they now are. I've continued to work with intermittant leave until last August. This they call Latent TM. I was told in the beginning, once I got well, it would probably stay away. I still have the feeling that there is a fist gripping between my shoulder blades frequently, but the weakness is worse than it's ever been. I'm barely walking, but I am walking. I fall alot. Since 1992 some doctors have learned about tm but many I've used have no idea. I was actually laughed at once for the burning sensation. I said give me a felt marker. I'll mark where it burns, and you will find a dermatone diagram standing in front of you. My biggest issue now is how to adjust to disability. I still have a mortgage over my head. I am a nurse who was working 12 hour shifts on her feet. My only problem was young nurses making fun when a foot dragged or I seemed to be tiring out. Today, I barely make it to 2 in the afternoon before it hurts to hold my head up. PT kills me. The tiniest exercizes and I can't do anything for 2 days without pain. Somehow this doesn't feel latent to me. I need all the advice I can get, especially on disability issues and lifestyle transitions.
