Hi Cheryl,
I don't write in often but when you mentioned that you should only be affected
below the level of the lesion I thought I should respond. My TM episode hit me
5 years ago at T12/L1. However, the damage from the TM attack left me with
neuropathic problems right to the top of my scalp which was numb, an ice cold
feeling in my mouth (I called myself an icycle-breathing dragon!), cold on ears
and face, torso, arms -- but, of course, everything was and is much worse in my
lower body and legs, feet, etc.
My left side was affected more than the right with the weakness, stiffness,
cold, burning, banding, numbness, screaming skin, crawling nerves and
everything else we, who were injured by a TM attack, have to deal with on an
ongoing basis. Every exacerbation I have still increases the neuropathic
problems in both my upper and lower body to some degree.
My neurologist said something to the effect that it was like an explosion in an
electrical cord where the explosion that I felt went both down and up but left
nothing above the T12/L1 site that was visible to all the MRIs I had. The
damage and inflammation was visible at the T12/L1 area.
I do at least one hour workout at least 6 days a week in order to keep going
and I swear by exercise. My muscles finally seem to be responding better and
it helps me keep going -- although not like I could before TM.
Anyway, the short answer could have been simply 'Yes, You can be affected above
the level of a TM attack.' :-) I just thought my longer version may be more
helpful.
Best of luck to all of you.
Regards.
Louise
----- Original Message -----
From: rn11...@yahoo.com
To: john snodgrass
Cc: tmic-list@eskimo.com
Sent: Wednesday, November 10, 2010 11:59 AM
Subject: Re: [TMIC] {TMIC}sweating
mixed or misunderstood signals from the brain to the body functions due
to the nerve damage
John,
I understand that. But,the lesion being thoracic (chest) means I
should only be affected below that level-not anywhere above it. The numbness is
still from that level (T4) down,with a few areas of extreme sensitivity
scattered around.That's what confused them and me about the sweating.
15 yrs later and still no explanation.
cheryl
--- On Wed, 11/10/10, john snodgrass <jcs...@yahoo.com> wrote:
From: john snodgrass <jcs...@yahoo.com>
Subject: Re: [TMIC] {TMIC}sweating
To: "transverse myelitis" <tmic-list@eskimo.com>
Date: Wednesday, November 10, 2010, 10:10 AM
mixed or misunderstood signals from the brain to the body
functions due to the nerve damage.
kinda odd ,,,,when i flew to fort knox KY i had to fly to PA to
catch that flight.
if i had missed the PA connection i would not have made it to
fort knox.
i think the brain works the same way. if theres a connection
problem anywhere then it will send signals or block signals trying to resolve
the problem and if it cant then it does all kinds of wierd stuff.
sometimes i wish mine would stop trying and just turn the
lights out and go to sleep but that would be a stroke ,,thats a bad thought.
if the Docs understood and could manipulate these things they
would make way more than they do.
--- On Wed, 11/10/10, rn11...@yahoo.com <rn11...@yahoo.com>
wrote:
From: rn11...@yahoo.com <rn11...@yahoo.com>
Subject: [TMIC] {TMIC}sweating
To: tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 9:30 AM
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I
perspire on my face,one side gets red and moist,the other stays pale and dry.
No one has ever had an explanation for this.A couple of docs even suggested
that maybe I always had this and just noticed it after tm!
Cheryl in Easthampton,MA
