John ...I almost never spasm and I can walk and drive unassisted.....but
the banding just above my right leg makes me walk crippled. The Cymbalta
helped with the banding but the anti-depressent side effects outweighed
the benefits. Hopefully the Baclofen will benefit the banding without
the side effects.
What have other members of the group found to be the most effective
drug for "banding" ?? After 13 + years with TM I will try almost
anything for some kind of relief!
I can now honestly say that I no longer remember what it felt like
before TM...sad!!!!!!
Rob in New Jersey
________________________________
From: john snodgrass [mailto:jcs...@yahoo.com]
Sent: Wednesday, November 24, 2010 9:42 AM
To: transverse myelitis
Subject: Re: [TMIC] Baclofen
i have been on baclofen for over 2 years. i am supposed to take 100mg a
day but usually just take 80.
the people that make the stuff say to take no more than 80 but my neuro
told me to take 100.
mine is a 20 mg pill.
sometimes it makes me a little sleepy.
it has helped with the spasms in my legs but not a whole lot with the
banding in my right side.
if i do not take it I not only have more pain with spasms but i jerk a
lot.
John in WV
--- On Wed, 11/24/10, Robert Pall <rp...@neillsupply.com> wrote:
From: Robert Pall <rp...@neillsupply.com>
Subject: [TMIC] Baclofen
To: tmic-list@eskimo.com
Date: Wednesday, November 24, 2010, 9:34 AM
Need a little help. I am presently weaning myself off of
Cymbalta (hated it!) and am down to 30 mg from 60 mg and I will be off
of the Cymbalta within about 2 more weeks. Once I am finished with the
Cymbalta I am going to retry ( I tried it more than 10 years ago)
Baclofen. The Neuro gave me a prescription of 10mg 3 times a day...but
he told me to build up to this dosage over time and to cut back on the
dosage if my leg starts to buckle. My question is for those who use
Baclofen (not the pump) what are the dosages you take. Also let me know
the benefits ....I am hoping it will reduce the excessive
banding.....and any negative side effects Baclofen has caused you.
Much thanks...and everyone...Have a wonderful Thanksgiving!
Rob in New Jersey
