my neuro said the backlofen he has me on was for the jerking, my wife made him put me back on it when he took me off of it once,she said i almost kicked her out of bed at night!
has me on the high dosage of gabapentin for the nerve pain i am so familar with --- On Sat, 12/18/10, kale...@sfcn.org <kale...@sfcn.org> wrote: > From: kale...@sfcn.org <kale...@sfcn.org> > Subject: Re: [TMIC] Gabapentin > To: "john snodgrass" <jcs...@yahoo.com> > Cc: "Dalton Garis" <malugss...@gmail.com>, "transverse myelitis" > <tmic-list@eskimo.com> > Date: Saturday, December 18, 2010, 11:09 AM > John, > > I'm not sure what your spasms are like - maybe yours are > much worse than > mine, but I've found that if I take sufficient calcium > supplements, I > don't have them. (What I refer to as 'spasms', for > me, is when nerves in > my legs actually cause my legs to jerk around when I'm > still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much > calcium foods > I've eaten. If my legs start to spasm, I know I > didn't take enough and > get up and take some. (Calcium is more effective if > taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at > once.) My > calcium levels were good before I was given the 5000 mg > methyl-prednisone > to zap the myelitis, but that zapped the calcium, > too. So this is likely > to be true for all of us who were given steroids to treat > the TM. It > might be worth it to give it a try. > > Sally > > > > > realy bad spasms. > > it helps some. > > i thought this stuff made you sleepy. > > i reckon i am immune. > > > > --- On Sat, 12/18/10, Dalton Garis <malugss...@gmail.com> > wrote: > > > > > > From: Dalton Garis <malugss...@gmail.com> > > Subject: Re: [TMIC] Gabapentin > > To: "john snodgrass" <jcs...@yahoo.com> > > Date: Saturday, December 18, 2010, 9:33 AM > > > > > > That is 4x what I am taking! > > > > John, do you have paralysis and spasms? And is that > why the neuro has you > > on such a high dose? > > > > Because I would love to be more medicated if I could. > > > > Dalton > > > > Office: +971-02-607-5070/5297 > > Mobile: +971-50-668-5760-- > > > > > > > > > > > > From: john snodgrass <jcs...@yahoo.com> > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > > To: Kevin Wolfthal <wolft...@optonline.net> > > Cc: transverse myelitis <tmic-list@eskimo.com> > > Subject: Re: [TMIC] Gabapentin > > Resent-From: <tmic-list@eskimo.com> > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > > > i am taking 2400 mg a day. it helps but it doesn't > heal me > > > > --- On Sat, 12/18/10, Kevin Wolfthal <wolft...@optonline.net> > wrote: > > > >> From: Kevin Wolfthal <wolft...@optonline.net> > >> Subject: [TMIC] Gabapentin > >> To: tmic-list@eskimo.com > >> Date: Saturday, December 18, 2010, 6:12 AM > >> > >> My new doctor visited me today. I asked him again > about > >> Gabapentin and he > >> is going to start me on 100mg 3 times a day. For > those who > >> take this, I would > >> like to hear how you did on it. I realize it's a > low > >> dosage. > >> > >> Thanks, > >> Kevin > >> > >> > > > > > > > > > > > > > > > > > > >