Janet,
Can the hemangioma be lazered or disolved in some way? we had a young
lady in TMIC about eight years ago who was diagnosed with TM and had all
of the symptoms. She was also diagnosed after about twelve months with
a teeny-tiny tumor against her spine that didn't originally show on her
mRI's. She went in for surgery and the last time I saw her in person I
hardly recognized her because she was walking so well.
I"m sure you and your doctors have discussed options and again I'm being
curious.
Patti - Michigan
On Fri, Dec 16, 2011 at 9:41 PM, Janet Dunn wrote:
HI Janice
It is not really what I was talking about – but I am very careful about
the shoes I wear – because tight shoes grieve my feet, loose shoes I
trip in, so I mainly wear crocs and a slip on clog type.
I used to have that sensitivity – and then it left. But now it is back
with a vengeance – way worse than before and it feels like I am always
stepping on a sizzling cord.
The banding is back – and I am not happy about the hemangioma.
Janet
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: December 15, 2011 4:28 PM
To: Janet Dunn; 'TMIC'; tmic-l...@eskimo.net
Subject: Re: [TMIC] New MRI results
Janet,
I have always had real sensitivity in my feet. If someone rubbed
them, they would really spasm. I have had TM for 5 years now.
What I am just recently noticing is that shoes that fit my foot –
leather – have started to be a problem. My right foot, right side has
always been a problem, spasms bad enough
that it lifts my whole leg up. Weird feeling! I then have to go to
a shoe I would consider slight loose. No problem with tennis shoes,
but sure don’t want to wear them out to
dinners, etc. I know I am more active now, but the shoes are
beginning to be a real problem.
Is this what you were talking about?
Janice
From: Janet Dunn
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Sent: Wednesday, December 14, 2011 3:11 AM
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To: 'TMIC'
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tmic-l...@eskimo.net
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Subject: [TMIC] New MRI results
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Hello Everybody
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I have had TM and the various symptoms of since August of 2004. I have
a lesion on my spine at T4-5. There are a few issues with that, put I
have been managing. Take my meds, keep my stress down, rest, - you all
know the routine.
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I was doing so well that this summer I actually began to wear “proper
ladies shoes” - including a pair of boots with a 1.5 inch heel – a
sturdy heel, but a heel none the less. I was weaning down on my meds –
life was grand to say the least.
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Then in October my feet began to tingle when I dried them with a towel.
I really didn’t think too much of it until that feeling moved up the
legs. I went to visit my daughter in Victoria in the beginning of
November, and found that the right leg (the troubled one) would give out
quite easily, and I would tire out. I got back to my home town and
went to see my Doc. He sent me for an MRI. And this is the news I want
to share. It is rather a “good” news, “bad” news situation.
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The MRI showed that the lesion of the cord at T4-5 were somewhat
technically different, and the cord is somewhat attenuated (squished) .
Essentially the clinical changes, and the subtle increased signal at the
t4 – 5 levels do not present any significant change, and not of clinical
significance.
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However, the report continues, there is a hemangioma at t4 and t7.
Basically a growth on the spinal cord. And that of course is pushing on
the cord itself which in turn is causing all the extra pain, and the
return of all the burning that I am experiencing, as well as the
numbness that is creeping up my abdomen. Wonder when it will stop, and
what kind of damage will it inflict before it does. Two months ago you
would have had no idea that I had a chronic illness with bothersome side
effects – today you do not see me very far away from a cane.
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The joys, the joys. Anyone ever heard of this and the outcome? Anyone
going to see anybody at John Hopkins or at the Mayo? I am supposed to
be seeing a neurologist again but that could take a year.
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So whether there is a clinical significance or not, there is definitely
a physical significance, and I really don’t care for it!
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Thanks for “listening” - that is why I love this list, and the people
on it.
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Janet Dunn
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Fort St John BC
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