Janet I am sorry to hear of your new found favor this body can offer. another day, another day, and yet tomorrow is another day.
WE are a special breed. Few get to experience what we experience. though we hate it we endure it. My Dad was telling another Dr that he had to see, whom I went to school with, of my condition, and the good Dr looked at Dad sideways remarking of how rare this situation is. Being the baby of our family I always thought i was special but good Lord help me not THIS special! keep your chin up,,people like you are few and far between. I pray your body finds a way to dissolve and resolve this new issue. Tomorrow will be better! ________________________________ From: "celr...@aol.com" <celr...@aol.com> To: j.d...@shaw.ca; tmic-list@eskimo.com; tmic-l...@eskimo.net Sent: Wednesday, December 14, 2011 10:08 AM Subject: Re: [TMIC] New MRI results I am so sorry to hear the news-would a round of steroids help? Jane/Splendora Tx In a message dated 12/14/2011 3:12:51 A.M. Central Standard Time, j.d...@shaw.ca writes: Hello Everybody > >I have had TM and the various symptoms of since August of 2004. I have a >lesion on my spine at T4-5. There are a few issues with that, put I have >been managing. Take my meds, keep my stress down, rest, - you all know the >routine. > >I was doing so well that this summer I actually began to wear “proper ladies >shoes” - including a pair of boots with a 1.5 inch heel – a sturdy heel, but >a heel none the less. I was weaning down on my meds – life was grand to say >the least. > >Then in October my feet began to tingle when I dried them with a towel. I >really didn’t think too much of it until that feeling moved up the legs. I >went to visit my daughter in Victoria in the beginning of November, and found >that the right leg (the troubled one) would give out quite easily, and I >would tire out. I got back to my home town and went to see my Doc. He >sent me for an MRI. And this is the news I want to share. It is rather a >“good” news, “bad” news situation. > >The MRI showed that the lesion of the cord at T4-5 were somewhat technically >different, and the cord is somewhat attenuated (squished) . Essentially the >clinical changes, and the subtle increased signal at the t4 – 5 levels do not >present any significant change, and not of clinical significance. > >However, the report continues, there is a hemangioma at t4 and t7. >Basically a growth on the spinal cord. And that of course is pushing on the >cord itself which in turn is causing all the extra pain, and the return of >all the burning that I am experiencing, as well as the numbness that is >creeping up my abdomen. Wonder when it will stop, and what kind of damage >will it inflict before it does. Two months ago you would have had no idea >that I had a chronic illness with bothersome side effects – today you do not >see me very far away from a cane. > >The joys, the joys. Anyone ever heard of this and the outcome? Anyone >going to see anybody at John Hopkins or at the Mayo? I am supposed to be >seeing a neurologist again but that could take a year. > >So whether there is a clinical significance or not, there is definitely a >physical significance, and I really don’t care for it! > >Thanks for “listening” - that is why I love this list, and the people on it. > >Janet Dunn >Fort St John BC
