I have been saying this same thing since I got DX-ed two years ago. My only concern is that there are medications or treatments available to me to reduce the pain and give me some time each day during which I can be useful to others. I never bothered worrying even about what I had! The Drs would like to spend all my money on the search to naming the thing beyond identifying it as an autoneurological/resident virus/whatever disease for which known treatment regimes are available.
Of course we're curious; and for those who wish to pursue it they cannot be faulted. But for me, just "give me the juice, Bruce!" and let me get on with my lie with something left in my wallet. Thanks, everyone, and I hope your team wins today! Daltn Dalton Garis 40-26 College Point Blvd. Tower 1, #17K Flushing, NY 11354 (718) 838-0437 From: Robert Pall <robthe...@aol.com> Date: Sun, 15 Jan 2012 12:12:05 -0500 (EST) To: <tmic-list@eskimo.com> Subject: [TMIC] Is it really so important to know? Resent-From: <tmic-list@eskimo.com> Resent-Date: Sun, 15 Jan 2012 09:15:36 -0800 > I have had TM for more than 14 years and I have gone to the best Doctors (Dr. > Kerr). In this group as well as some of the other facebook groups there seems > to be a preoccupation with trying to find the cause that brought TM into our > lives. I certainly understand the importance of medical researchers looking > for these answers but I don't understand why it is so important for us to have > a definitive answer as to why we were unlucky enough to contact TM. > I am a layman when it comes to our condition. I see my neuro twice a year > basically for pain management. I do not waste my time trying to answer a > question for which there is no answer. > We were just unlucky enough to have hit the million to one lottery....why > us..was it stress, was it a flu shot, was it just a common cold that our > immune system attacked improperly???? > God only knows ....and try as we might how are we supposed to figure out the > cause when none of our doctors have been able to? > > For me the most important things that a support group like ours can supply is > the medications that have been sucessful, and or the doctors that we have > confidence in. I like all of you pray for a cure....but at my age (64) I pray > it does not get worse and that new medications might make me feel better. > > Ok I am starting to ramble.... > > All the best to all! > Rob in New Jersey
