If there was a “butting in”, I would have been bannned from here long ago!!
Janice
From: heyjude48...@aol.com
Sent: Saturday, January 26, 2013 6:35 PM
To: xbeecla...@gmail.com
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Tonight, Today, Tomorrow
I hope it's ok to butt in, I haven't had a drink since I first tried one
shortly after coming down with TM. It knocked me for a loop! Almost fell out
of my chair, threw up for hours and said never again! I was never a big
drinker, but that one drink did it for me!
Jude
In a message dated 1/26/2013 7:09:56 P.M. Eastern Standard Time,
xbeecla...@gmail.com writes:
I don't know it affects you, but whenever I have any alcohol, it interferes
with the effectiveness of my pain medication. I was never a lush - a glass of
wine or a beer occasionally, or a mixed drink or champagne at parties and
holidays - but ever since TM, I can't drink anything without the pain breaking
through way sooner than it should. I tried several times thinking it was just a
coincidence or I was overly fatigued prior to the drink, but it happens every
time no matter what. Kinda puts a damper on celebrations now, but I've resigned
myself to NOT imbibe - it just isn't worth the discomfort!
Betty
On 1/26/2013 2:41 PM, Janice Nichols wrote:
Linda,
I have a good friend who has tremors in his hands too. You are right, he
says a good stiff drink makes a difference with his tremors!
You are making the best of what TM has done to you and that is saying a
lot!! Keep it up and keep responding.
Janice
From: Linda Egli
Sent: Saturday, January 26, 2013 11:10 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Tonight, Today, Tomorrow
I lost a wonderful job working in a local Public Health Department. I had
worked there for 12 years & loved every minute of the job. I went to the
doctor with severe numbness & loss of motor function, I then saw a neurologist
& after a 36 years as a nurse, my career was over. I left work that day & was
never able to return - very hard to deal with & probably took 2-3 yeas to
finally accept.
I miss dancing; I was not the greatest but I enjoyed it.
The main thing I miss now is only having partial use of my hands. About 2
years into TM I developed essential tremors in both hands (especially the right
hand & I am right handed). I take Primidone but it really doesn't help a lot.
The main thing that helps the tremors is alcohol & I can't drink every 4-6
hours, (but some days I try). Between the severe numbness & tremors, using my
hands can be difficult. I had always enjoyed sewing, needlework, crocheting,
scrap booking, & just anything involving arts & crafts. I got rid of 95% of my
craft & sewing items because I could not stand not being able to use them (I
had a whole room for crafts). I have found I can do jigsaw puzzles - the 3-D
ones with larger foam pieces or a little crocheting if I keep it at 15 -20
minutes.
I try to be positive as much as possible, knowing there are many people
with much worse difficulty than me. On a good note, I have a wonderful
supportive husband (helps with laundry & tries to help cooking), good medical
coverage, & am able to afford someone in to help with the house 3 days weekly.
Life is what you make of it.
Linda E.
----------------------------------------------------------------------------
From: john snodgrass mailto:jcs...@yahoo.com
To: transverse myelitis mailto:tmic-list@eskimo.com
Sent: Saturday, January 26, 2013 5:44 AM
Subject: Re: [TMIC] Tonight, Today, Tomorrow
i was a work-a-holic
i sure miss that!
----------------------------------------------------------------------------
From: mailto:heyjude48...@aol.com mailto:heyjude48...@aol.com
To: tmic-list@eskimo.com
Cc: heyjude48...@aol.com
Sent: Friday, January 25, 2013 10:32 PM
Subject: [TMIC] Tonight, Today, Tomorrow
Hi everybody,
Tonight, sitting here doing nothing, I'm wondering how Transverse Myelitis
has affected your life. What has it stolen from you. Maybe everything, maybe
nothing. I'm sure it is a personal thing.
Some people choose to focus on life and believe that everything in life
happens for a reason.
I love life and refuse to let TM steal one minute. Life is made up of many
joyous moments and I choose to focus on those moments, not TM.
Because of my love for life, I refuse to feel sorry for myself. I've
learned to be outspoken about my TM and I've become a demanding person because
of TM.
I hate that I've had to give up driving and remember how it used to feel
heading down the highway with my arm resting on the window turned all the way
down.
Always remember that today could be potentially the best day of your life.
Never take today for granted. When you wake up each morning remember to thank
God for giving you another day.
Always end the day with a positive thought. No matter how hard thing were,
Tomorrow is a fresh opportunity to make it better. (unknown)
