Anne and Roger, I am perplexed by both of your posts because of how long you have had TM and that you have had further attacks after so many years. Anne, you said you are now confined to a bed or wheelchair, but didn't say if it was the result of a new TM attack. Did you have a second attack many years after the first? I also wonder if either of you have a clue as to what triggered your attacks. My TM was idiopathic and I truly believed after nine years of no new symptoms (I have plenty old symptoms) that I wasn't going to have a second attack. Just one more reason to hope they find a cure.
Patti - Michigan On Apr 3, 2013, at 9:10 PM, Roger & Terese Pratt <r.c.pr...@frontier.com> wrote: > Anne, > > I have had TM for over 19 years, with a secondary attack in 2010 that > resulted in peripheral nerve damage. I am on Lyrica, Cymbalta, Zanaflex, and > Tylenol PM for the TM stuff, other meds for high cholesterol and acid reflux. > While the meds help some, I find that I just need to stay as positive as > possible and "grin and bear it". Adverse reactions to meds and allergies are > the pits, but I say that is just because I am such a complex person. I hope > you find some meds that help. > > Roger in Kennewick, WA > > From: Pat Voorheis <pjv1...@chartermi.net> > To: Janice Nichols <jan...@centurytel.net> > Cc: dee jay <dj88up...@yahoo.com>; "<tmic-list@eskimo.com>" > <tmic-list@eskimo.com> > Sent: Wednesday, April 3, 2013 5:34 PM > Subject: Re: [TMIC] Hello > > Hi Anne, > > I'm sorry to learn that you are experiencing difficulties after so many years > away from TM's clutches. I take 10mg Baclofen every eight hours that almost > stops the banding. The banding is around my mid-section - like a corset. I > also take Lyrica which has some muscle relaxing effects, but I really give > credit to the Baclofen. > > I hope you can find a muscle relaxer that works for you. Also, Baclofen is > inexpensive and Lyrica expensive if you do not have full drug insurance > coverage. > > TM since 2003, age 53, lesion level was C4-C6. > > Patti -Michigan > > On Apr 1, 2013, at 12:10 PM, "Janice Nichols" <jan...@centurytel.net> wrote: > >> Anne, >> >> Glad you found our group. It would help if we knew what meds you were on. >> Many of us are on different meds for the same problems. Also, there are >> some meds that almost all of us take. >> Some have more painful banding than others too. I do not have “painful” >> banding, just a pressure feeling. But I am sure you will hear from others >> that have more of a problem with it. >> >> Come on TM’ers. Anne needs help from all of you. >> >> Janice >> >> >> From: dee jay >> Sent: Sunday, March 31, 2013 9:05 PM >> To: tmic-list@eskimo.com >> Subject: [TMIC] Hello >> >> Hello everyone. My name is Anne and I have just joined your group. I was >> diagnosed with TM in 1975, completely recovered, and then 23 years later >> here I am confined to a wheelchair/hospital bed and will be for the rest of >> my life. I hae just started experiencing this "banding" and have so many >> allergies to medications even the doctor does not know what to do. Any help >> would be appreciated. > >
