Anjana: Thank you for explaining this so well to me. I went and brought out my last test results (I think I shared them with you before after I received them, can't remember) & this is what they say. I don't remember if I have the results from my very first biopsy back in Jan. 2004 or not, this is from 7/10/06 & they are done at Genzyme Genetics in Westborough, Ma. According to their PCR test, a 1 in 100,000 transcripts (0.001%). They have a little graph showing me at 0.01 log % and up where it says Results: shows Positive: Major breakpoint (0.007%). The FISH test is Negative. It's done at Genzyme in Santa Fe, NM. Don't know why two different genetics labs are used. I just noticed this.....thought it was all done in New Mexico. Oh well. I hope you can figure this out or understand it. Thanks again for all your great information.
A different subject: my mother has been having a terrible time with her platelets. Back beginning in April she noticed herself being all bruised up and had sores in her mouth, so went to the doctor and they found her platelet level extremely low and started her on Prednizone 20mgs., I believe. She kept going back for testing and it showed they responded and started up again and he would cut her dosage down each time until he had her on 5mg. daily. They had reached a high of 281 and by end of July (her last appointment as she then came here to be with me through August and went back home to Fl. on 24th) they had started to drop a little bit. When she went to her appointment around the end of August they had dropped a bit more, but he decided to take her off the Prednizone totally. Well, last Monday she woke not feeling well at all and had sores in her mouth again, so went in to see the dr. Her platelets were down to 1 and he immediately began her on an I.V. treatment of Immune Gammaglobulin (12 bottles, she said), she went back the next day and they hadn't risen any and they did another round of the Immune Gammaglobulin (she's also back on the Prednizone.). Yesterday they had come up to 5 but this morning when she went back they were down to 3 and he bumped up the Prednizone to 60mgs. daily and she's to come back in the morning for more testing. He told her if they had dropped again, he was going to do a Platelet Transfusion. This doctor is supposedly the best Hem/Onc there and her primary doctor also told her that he is treating her the best they know how to. They both have told her it is an Auto-Immune Disease of the Platelets & they have no explanation as to what causes this. My brothers and I are all very concerned that she's getting the right treatment & if she's been tested for other things that might cause this., etc. Plus, we all are wondering "why" he took her off the Prednizone the first time when it was clearly showing that her platelets were dropping. That just didn't make sense to me & I don't think Mom has been thinking to clearly to ask him. My lab paperwork shows that a normal range for platelets is between 140 to 440. Is that 14,000 to 44,000 or 140,000 to 440,000? I used to know, but forgotten. Should she have a bone marrow biopsy, would that tell anything as to the cause? I think we are all stumped here on this one. I'm not use to having a doctor say they don't know what causes it. Thanks for letting me ramble......just keep her in your prayers. Love, Suzieq --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
