Hi Angie, I wish you the very best of luck on your Gleevec "holiday" Yes, 12 years is a long time.
18's Marty Number 1 on Zavies Zero List. I sure do miss him. Disgnosed July 1989 Bone Marrow Transplant May 21St 1990 (23 years ago) On Tue, Jun 4, 2013 at 11:13 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: > I started Gleevec at McMaster University Medical Centre in Hamilton, > Canada, on Jan. 22, 2001. My tests in June 2001 confirmed that I had > reached cytogenic remission. I think I was #69 in Zavie's Zero Club. > I am planning to discuss a holiday from Gleevec next time I see Dr. > Walker, my hematologist at Juravinski in Hamilton. We shall see....12 years > is a long time.... > > What lies behind us and what lies before us are tiny matters compared to > what lies within us.... > Angie > ------------------------------ > *From:* Richard H <richard1huff...@comcast.net> > *To:* cmlhope@googlegroups.com > *Cc:* "CMLHope@googlegroups.com" <CMLHope@googlegroups.com> > *Sent:* Monday, June 3, 2013 11:25:59 PM > *Subject:* [CMLHope] Re: Taking a break from gleevec after over 12 years > > That's great news. When I went off Gleevec 5 years ago. I was tested > every month for a while then as I progressed with excellent results to 3 > months and then 6 months. The body also responded nicely, I gained energy, > lost 30 pounds and my leg edema went away. I am glad your ONC is willing > to work with you. > > Richard H. > > On Monday, June 3, 2013 9:35:22 PM UTC-5, Sylvia wrote: > > Hello everyone > It has been many years since I have written to this group. I was diagnosed > with CML in June 1998 at 37 years old and many friends I met through this > group are no longer with us. Those were the days of interferon and ara-c, > procrit etc (all via injection). I was one of the first to start Gleevec > in Canada in April 2001. I am number 80 in Zavies Zero club! Gleevec has > given me back my life and I am very thankful for it. That being said the > last few months I have had swelling in my legs and stiff knees and I have > taken myself off the Gleevec. In 12 years I have barely missed any days, > but now I am feeling my body need a rest. I am worried about my liver and > Millie's email reinforces my feelings that I need a break from the Gleevec. > I told my dr and he wants me to come in for a PCR in a month and not wait > until my 4 mos check up in Aug. I am very interested in what everyone in > this community thinks and if they can offer me some advice. > My prayers to Millie and all those with challenges. Thanks to everyone for > their support all these years. > > Sylvia > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
