Sylvia:

I certainly understand where you are coming from.  We must listen to our 
bodies and do what is best.  I have been on Gleevec since Feb. '04. 
 Started out on 400 mgs. with only a one week break as my red cells and 
platelets dropped dramatically and they wanted them to come back up.  I 
also gave myself a two week break a few Christmas's ago,  but that has been 
it pretty much the whole time.  It'll be ten years next January that I was 
dx'ed.  A year ago,  my doctor allowed me to go to 200mgs. and I've 
remained undetected.  So, I just saw her one week ago,  asked her if the 
test comes back "none detected" could I drop it to 100mgs. and she said she 
didn't see why not.  I still feel that the Gleevec has expedited all this 
Arthritis that seems to be taking over my body in various places.  It's 
just a feeling I have......I did not have any problems at all before.  (And 
before somebody else brings up the Aspartame,  no I do not use it in any of 
the stuff I eat or drink.  If I use a sugar substitute at all,  it's Sweet 
& Low.  That's usually only on my fruit if I have it or Oatmeal. I don't 
drink soda & my tea or coffee is just plain. :)    

Thankful to those who brought up the Gout,  since I've been eating the 
Cherries (they have them fresh in produce now, yay!!!),  dried Cherries or 
drinking the juice,  I am happy to say that a lot of the joint and bone 
pain has disappeared.  I can remember the dull aching in the leg bones at 
night time or sitting with legs up.......just awful.  Don't have that 
anymore.  This group of people has helped me more than my doctors and 
nurses have.  So very thankful for each and everyone of you.

Millie.....you made me crack up laughing thinking of you & the "Hopper" 
commercial of Grandpa setting on the throne with his legs up watching tv. 
Thanks! :)  Thought I was going to have to go to the bathroom myself! :)  I 
do hope that you have some good days soon.......wished it was where I could 
come and stop in for a visit soon....we could laugh and laugh, that's for 
sure! :)

Love to all
Keep Looking Up,
Suzieq 


>

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