Jeanie,
Looking forward to hearing from you about good results!
Susan F. Zimmerman
-----Original Message-----
From: margood18 via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Aug 11, 2014 11:14 am
Subject: Re: [CMLHope] jeanie blood draw tomorrow
Good luck, Jeanie. Can't wait for you to post hopefully excellent results!
Marcie
-----Original Message-----
From: ICANDOALLTTC via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sun, Aug 10, 2014 6:13 pm
Subject: [CMLHope] jeanie blood draw tomorrow
Hi Susan and all my CML warriors,
I am excited about going to get my blood test tomorrow!
I haven't been for 6 months and that is the longest I have ever been going to
see my onc. My PCD did do a blood test and all was good so hoping all is good
tomorrow.
I also get a PCR done when I go; so looking forward to seeing those results,
however they won't be in for a few weeks after the blood has been drawn.
Did I tell you the story about going to my onc and having the blood drawn?it
goes like this.
I always go to the blood draw center and get my blood work done before seeing
my onc. I was called in and the nurse started drawing my blood. Well, she
only took 1 vial of blood and I was wondering as they always take two.
So I saw my onc about 1 hour later; he was upset and come to find out, they
hadn't done the blood for the PCR. I had to go back to the blood draw and have
another vial taken.
Now I have to make sure they are taking 2 vials when I go. I pray that I am
still in remission.
I hope everyone is good tonight.
I am good and am going to try to get a good night's sleep for my adventure
tomorrow.
Blessing
Jeanie<3
In a message dated 8/7/2014 11:51:13 A.M. Eastern Daylight Time,
cmlhope@googlegroups.com writes:
Jeanie,
It is so good to know you also got fast results!!! We have so much to be
thankful for. Have a great day!
Susan F. Zimmerman
-----Original Message-----
From: ICANDOALLTTC via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, Aug 7, 2014 11:40 am
Subject: Re: [CMLHope] Here's some posts!
Hi Susan and so glad you are doing so well on the new med. I got my
remission after only a few months on Sprycel. I am so happy that these new
meds were developed as they have saved my life three time as of this date.
Good luck,
Jeanie<3
In a message dated 8/7/2014 10:01:30 A.M. Eastern Daylight Time,
cmlhope@googlegroups.com writes:
Hello Marty, Marcie and Skip, along with all the rest,
So sorry to hear about your car acccident, Marcie! You truly did have your
angel watching over you.
Marty, still praying for your kidney to be donated....there's one out there
for you, I just know it!
Skip, good advice to those who might need the infusions about do they know
how to treat shock....guess you can be thankful you are not in the hospital
as it stands!
Good news on my front - in three months on bosutinib (bosulif) at 100 mg, I
have gone from 9.0 IS for the bcr/abl testing down to 1.70!!!
I truly know this is unheard of in the treatment. I am one blessed person!
I still deal with lack of energy and slight nausea once in a while, so got
some medication for the nausea. My blood pressure was affected so now am
on med for that....trying hard to get a handle on the diabetes numbers to
get and stay as normal as possible. (What is normal for any of us???)
May you all have a wonderful week as you concentrate on the positive
instead of the negative. Hooray! I am also excited to meet David and
Grace Greenburg, (greenie) coming up this month!
Here's a thought: "If the people around you were dependent on your WORDS
for nourishment, would they be dying of malnutrition?"
18's,
Susan F. Zimmerman
-----Original Message-----
From: margood18 via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, Aug 7, 2014 9:46 am
Subject: Re: [CMLHope] I haven't seen any poste lately
Skip, so glad you are starting to feel better. You give me hope that I can
keep going a long time with this disease. Are you all settled in your new
apartment? Stay well.
Marcie
-----Original Message-----
From: 'Skip Duffie' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, Aug 7, 2014 8:47 am
Subject: Re: [CMLHope] I haven't seen any poste lately
Hello Marty,
I am sorry for not posting much, I am just now starting to recover, I
had that stint in the Hospital and when I got out , I went for my
regular infusions. The red cells went great but then I had a very bad
reaction to the platelets. They had to stop the infusion have an
investigation, before I could receive any more platelets, I ended up with
just 1 platelet yes 1. One platelet is the same as having 10. The
machine cannot tell the difference from 0 or 10. I did not think I was
getting out of this one, but here I am feeling not to darned bad.
My advice to anyone getting regular infusions (platelets, red cells) check
to see if they are prepared for shock.
Marty I know your having a hard time as well, my prayers are for all us who
face this dragon every day.
SkipD (longest survivor in the world as far as we can tell) diag 1977
They are sure I had it longer but not just diag.
On Thursday, August 7, 2014 1:15:18 AM, Marty Gartenberg <wa2...@gmail.com>
wrote:
Is everyone alright? I haven't seen anything poster for nearly two weeks???
18's,
Marty
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