Hi Jeanie I got a rash all over my body
On Wednesday, February 4, 2015 9:56 AM, 'Icandoallttc' via CMLHope
<cmlhope@googlegroups.com> wrote:
Hi John What was your allergy to allopurinol ? My stomach and back have been
hurting!!
Prayers & Blessings Jeanie 18's 🐠🐠
On Feb 4, 2015, at 8:07 AM, Icandoallttc <icandoall...@aol.com> wrote:
11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it starts
working. My onc says it's my last choice but there is one more tki I haven't
tried--bositinib--not sure if spelling. Thanks for the uplift.
Prayers & Blessings Jeanie 18's 🐠🐠
On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope <cmlhope@googlegroups.com>
wrote:
Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless Dr.
Druker! Five years for me February 12th. I was diagnosed at 48.
Take good care and enjoy the warmth! Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 8:31 pm
Subject: Re: [CMLHope] Ponatinib
Beth, get out the heating pad make sure it's a big one they make different
sizes. I go fishing under the bridge going over to Sanibel sometimes. If you
do come down here we will get together that's for sure. Just get better. My
son Derek's wife Ruby, she has a massage and yoga wellness studio 118 North
Clinton St., Suite 102 in Chicago. It's called Massage Evolved. website
(massageevolved.com). They started a little over a year ago and seem to be
doing very good. He called me over the weekend and told me about the snow.
You miss Florida and I'm sorry I don't miss North West Indiana because of that
weather. Summer is just to short up their, Grace and my bones can't take it.
Plus getting sick with a cold. But Grace want's so purchase a small house or
condo up their for the summer so we would miss the real hot months down here.
It would only be for 4 to 5 months. That way we could visit with our grand
kids and our kids. I can remember when I first found out that I had CML, it was
to weeks before xmas 1998. I asked the doctor at that time how much time I had
and she said between 1 1/2 to 2 years. She put me on hydra then she sent me to
Northwestern to see doctor Tallman and he put me in a study with interferon
which almost killed me it was that bad. They stopped it after 3 months because
I told him I couldn't take be that sick anymore. So they stopped the study
early..I wanted to die, a short time he called me to put me in another study
called STI571. Their was only 8 of us and I was the only one from Indiana plus
the oldest of the 7. The study had 200 people from the US and this was the
only country using STI571. And here I am after 15 years still driving everyone
crazy. It's funny how things turn out, I call it faith. You just got to hang
in their things will get better it won't happen over night. greenie In a
message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Greenie,
It's snowing again here in Chicago land..hopefully only a couple of inches..to
add to the 20 plus already on the ground. I have been down with a bad cold this
week...but I watched my neighbors son--- 23 year old..trying to dig out people-
including me! .snow drifts were waist high! It's crazy...and now..it also got
very cold...below zero wind chills last night..so lots of ice...ah winter....
I was dreaming last night about the causeway between Fort Myers and
Sanibel...watching the Osprey soar, seeing dolphin in the water...the pelicans
sitting on wood stumps along the water...snowy egrets..and then I woke up!!!
Must get back there soon one day...maybe at the end of this year...hope to meet
you when I do.
Will look to hear from you about your test results tomorrow.
Take care, Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 5:57 am
Subject: Re: [CMLHope] Ponatinib
Hi Beth, I received a call from my son Derek about the snow he lives in
North Chicago. I hope I never have to move back north, can't handle the cold
and snow. greenie In a message dated 2/2/2015 10:42:17 P.M. Eastern
Standard Time, cmlhope@googlegroups.com writes:
Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. Hope
the ponatinib works soon Jeanie and sorry you are struggling Skip. Do let us
know if you what you decide regarding ponatinib. I think about it also. ...
Greenie, hope you and your wife are feeling much better.
Snow here in Chicago. 21 inches, drifts up to my waist when I opened my front
door this morning. Now work today..have a cold so it was a good day to bunker
down here.
Blessings and love to all. Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Feb 2, 2015 3:45 pm
Subject: Re: [CMLHope] Ponatinib
Jeanie, it's a good thing we don't get snow or ice here in Florida because
the way these people drive here the insurances companies would go out of
business in one day. They can't drive here when the roads are dry. greenie
In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Thanks Skip-I've never had blood counts that low--always battling high ones.
Wow! That storm sounds neat! We never get sleet and snow in Florida. I saw a
sleet and snow storm in my visit to Switzerland. My kids loved it and were
playing in it. I wasn't that brave--I went inside hehe. I hope you get your
platelets soon.
Prayers & Blessings Jeanie 18's
On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope"
<cmlhope@googlegroups.com> wrote:
I am so sorry you counts vary so much mine have been doing that now for a
few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. neut 0.3...
ANC 0.279 normally I would get somePLTS tomorrow but we have another big storm
going to hit tonight and will have freezing rain in morning and all the snow
will turn to ice.. so we will hold off until Wed. I am sorry for not posting
much but I find using the computer very makes me very tired lately. still
thinking about Ponatinib, this is my fourth year without anything except blood
and platelet infusions Skip Duffie
My brother lives in Naples, I live in South Fort Myers min. from the
beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and Sat
68. Below normal should be in the low 80's BUT better then SNOW> Greenie
In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time,
jl...@rogers.com writes:
Hi I am OK I had my counts done last Wednesday and my platelets were 35 and
white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am still off
the drug and have another check this coming Wednesday. I will go back on the
drug then and probably at 2 or three a week. My wife and I will be coming to
Naples Florida to visit friends for a week or so. I hope it will be warm. Have
your counts come down ?
Sent from my iPad
> On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope
> <cmlhope@googlegroups.com> wrote:
>
> Hi John
> I go to Moffitt cancer center. How are you?
>
> Prayers & Blessings Jeanie 18's
>
>> On Jan 31, 2015, at 10:47 AM, John Barrons <jl...@rogers.com> wrote:
>>
>> Hi Jeanie: Where are getting treated? John
>>
>> Sent from my iPad
>>
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