Thanks John. I was in remission a few months after being on Sprycel. After a few months I was tested often. Then we changed it to every 3 months. It was during these 3 months that I lost my remission and my counts went way up. A blood test was taken to see if I had a mutant against Sprycel--I did, therefore I was changed to Ponatinib. No change to blood so far. If you have no response by 3 months they will take me off. I pray it will work. Why so many tubes of blood? They only take 2 from me.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 3, 2015, at 10:49 AM, John Barrons <jl...@rogers.com> wrote: > > I was philly 100% positive until I was on ponatinib. I did then have a > molecular change that reduced the Phillies to around 50%. I don't know where > they are now but I will try to find out tomorrow. I can't remember how long > it took to have the change, but it wasn't long, maybe three months???. How > did your platelet count get so high? I have check up every two to three > weeks, sometimes weekly. Last Wednesday they took 11 tubes of blood (yikes). > I will find out the results tomorrow. John > > Sent from my iPad > >> On Feb 3, 2015, at 9:49 AM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> That's great john!! >> Tkis are very expensive in the US. My Sprycel was over$10,000 monthly. I >> haven't gotten the price of the ponatinib yet but I heard it was high. >> I have Medicare part D that pays most of the cost. It hasn't worked for me >> yet--this is day 9--how long did it take for it to work for you? >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Feb 3, 2015, at 9:37 AM, John Barrons <jl...@rogers.com> wrote: >>> >>> Hi all I get my ponatinib on compassionate considerations. How much does it >>> cost in the US? In Canada all the drugs are at no direct cost, but don't >>> ever think we don't pay for them some where along the line. John >>> >>> Sent from my iPad >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
