Dear Susan,
That was very interesting! I think we met once when I came to Miami to hear Dr. Druker with a friend named Sharon Kraby. Both of us of course have CML. We attended a meeting and dinner put on by LLS. It was great meeting Dr. Druker. Anyway, your history is unique as all of us have a unique story. I went 7 years without any medication and remained in cellular remission. Now I am on only 100 mg of bosulif for about 8 months, and in total MMR. Very few side effects. Be blessed and 18's, Susan F. Zimmerman -----Original Message----- From: 'educatorsusan' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Feb 25, 2015 7:56 am Subject: Re: [CMLHope] Doctor's Visit Richard and Greenie: I have been on 250mg of Gleevec now since 2008 or so. I'd have to look up the correct date. But in order to be on this dosage I am being closely monitored by Dr. Druker with PK and PCR tests every three months. I still have side effects with this dosage. I just had one huge major eyebleed. This has been followed by many leg cramps...bet it's related somehow because I had a spell of no cramping and this eyebleed appeared. Even at 250, my nano liter measurement was 1325. This is high for 250 mg of Gleevec. I just metabolize Gleevec differently than anyone else. Dr. Druker will only keep me on Gleevec because of my side effects. Only named two because they are the pertinent ones...but have tinnitus, blurring of vision, and a multitude of others. I take 2250 of Citrical PLUS daily in split dosages to counteract the cramping...lowered from 3000 something because I was on 400-600 mg of Gleevec from 2003-2008. I was written up in Blood magazine by Dr. Druker to show that all medications need to be tailored to each individual patient...no two patients are alike...think this was in 2009-2010. He told me that because of me, we were making history back then...of course he could not use my name but told me when I read the article, I would definitely know which patient I was! Good luck on your continued journeys. Hugs, Susan Rosenthal Miami, Florida -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
