Peter, I too had the tasigna rash, severe at three quarters of the standard
doseage. My eye brows fell out and half my hair as well..lowering the doseage
helped the severity of the rash..but in the end, my liver didn't like the
drug....I know many people that do really well on the drug, and have good
energy, less tired than some of the other TKI's..I hope this is you..wish I had
a magic want for the rash, but it's very common unfortunately..and at least for
me, the dosage up and down was significant...in how bad the rash showed up.
Take good care, hang in there!!!! What warrior's we are all!
18's Beth
-----Original Message-----
From: Peter <pksch...@gmail.com>
To: CMLHope <cmlhope@googlegroups.com>
Cc: candles <cand...@originalsbykate.com>
Sent: Fri, Jul 24, 2015 2:39 pm
Subject: Re: [CMLHope] New results
Almost undetectable after only 8 months - that's wonderful! I would gladly put
up with the rash if I had those those results.
I got the Tasigna rash about one year after starting Tasigna. The dermatologist
was clueless ("I dunno, must be the medication").
Anyways, those nasty pimples wandered in groups all over the place, chest,
belly, legs, rear end, arms.
It all subsides after about nine months. Now I only get the odd pimple here or
there.
I tried all the usual suspects, antihystamines, steroids etc., none of which
did any good.
Hydrocortizone was the only one which helped in speeding up the healing process
for those nasty painful ones. But still, they would take weeks or even months
to heal.
Sorry, no magic solution that I know of. Just hang in there and enjoy the great
results.
On Friday, July 24, 2015 at 1:10:52 PM UTC-4, candles wrote:
I was diagnosed in jan 2015 and put on tasigna, my numbers are great as was the
last bone marrow test. The ph chromosome was almost undectable!
Yes I know all of this great news and I am glad, however the 'rash' side effect
has me a virtual prisoner! My face, neck chest hands and feet are a mess.
Anyone out there had this prob !! I'm seeing a dermatologist but so far nothing
is really working. The areas are also heat sensitive, so sunlight, hot showers
are a thing a the past for me. Would love to hear from anyone!!
Sent from my iPhone
On Jul 24, 2015, at 12:14 PM, 'Icandoallttc' via CMLHope <
cml...@googlegroups.com> wrote:
>>
>> Jeanie,
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