Thanks Joyce. It's one of those pains that you wish they could find out whAt causes it but you are afraid they will. I have had several ct scans with no answers. The pain got worse when I went on Tasigna. Tasigna never worked for me--just made me really sick and I had to have blood transfusions on it. I did best on Spyrcel but it quit working after 6 years. This is a battle that we must fight. I pray daily for all.
My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jul 24, 2015, at 9:50 PM, Joyce Mesnarich <joy...@htc.net> wrote: > > Jeanie, > I know you have been dealing with that pain for a long time. Medicine has > come so far and yet the Good Lord holds some secrets from us. I hope in Sept > they will get a clue as to the pain's cause. > Joyce in IL > > >> On Jul 24, 2015, at 11:20 AM, 'Icandoallttc' via CMLHope wrote: >> >> Just wanted to say that I take OTC pain killers and have tried prescription >> ones. I have a right side pain that won't go away and they can't find out >> what it is. Nothing seems to help the pain. >> They are doing a ct scan in Sept to see if they can find it but they have >> already done that with no luck. Blessings >> >> My Motto: Faith and Pills >> Jeanie 🐟🐟18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Jul 24, 2015, at 12:14 PM, "'Icandoallttc' via CMLHope" >>> <cmlhope@googlegroups.com> wrote: >>> >>> Hi Joyce. >>> It looks like your liver counts are 1-10% common to increase on that drug. >>> Read the information that comes with the meds. Read the whole document >>> through. >>> They will stabilize as well as other side effects. >>> It seems I will go from one side effect to another as time passes. >>> Fight on. Good luck. >>> >>> My Motto: Faith and Pills >>> Jeanie 🐟🐟18,s >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>>> On Jul 23, 2015, at 11:43 PM, Joyce Mesnarich <joy...@htc.net> wrote: >>>> >>>> Jeanie, >>>> Thanks for your interest and suggestion. We have gone over all his other >>>> meds with doctors and nothing should affect the liver. He doesn't take >>>> any OVC pain meds, or any pain meds. And he does not drink alcohol. The >>>> primary doctor says that the drug information for bosulif says it can >>>> cause liver problems, but Dr Talpaz is less certain of that and he is the >>>> specialist. He says he is watching it closely and I guess we will just >>>> trust him. Wayne is getting blood tests every other week locally and they >>>> are sent to Dr Talpaz. The liver enzyme levels seem to have stabilized, >>>> although they are elevated. As you say, faith and pills. One of Wayne's >>>> mottos is "Better living through chemistry". LOL I think that used to be >>>> part of a TV ad for a large chemical company, maybe Du Pont or Monsanto. >>>> >>>> Joyce in IL >>>> >>>> >>>>> On Jul 23, 2015, at 11:32 AM, 'Icandoallttc' via CMLHope wrote: >>>>> >>>>> Be careful with his diet. Ovc pain pills hurt the liver as well as other >>>>> drugs we take. Ask your pharmacy if any other drugs he take are hurting >>>>> his liver. It's hard but maybe they can figure out something. >>>>> Good luck. >>>>> >>>>> My Motto: Faith and Pills >>>>> Jeanie 🐟🐟18,s >>>>> Dx 1/2004. CML Leukemia >>>>> Started Gleevec 2/2004 >>>>> Started Tasigna 9/2009 >>>>> Started Sprycel 11/2009 >>>>> Started Ponatinib January 2015 >>>>> Dr Balducci Moffitt Cancer Center >>>>> >>>>>> On Jul 22, 2015, at 2:01 PM, lrc lrc <kneesrb...@gmail.com> wrote: >>>>>> >>>>>> Joyce does he drink alcohol? >>>>>> >>>>>>> On Jul 22, 2015 1:43 PM, "margood18 via CMLHope" >>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>> Joyce, so glad to hear that your husband's PCR is lower and I hope that >>>>>>> his liver function will steady. Best wishes to both of you. >>>>>>> >>>>>>> Marcie >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Joyce Mesnarich <joy...@htc.net> >>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>> Sent: Wed, Jul 22, 2015 12:16 pm >>>>>>> Subject: [CMLHope] New results >>>>>>> >>>>>>> Hello everyone. I have not had time to contribute for awhile. But I >>>>>>> must let >>>>>>> you all know the results of my husband's PCR at his last visit to Dr >>>>>>> Talpaz. He >>>>>>> was taken off Sprycel due to pleural effusion and we were hoping his >>>>>>> undetectable would hold....but it did not. He was subsequently put on >>>>>>> bosulif >>>>>>> and not showing much improvement after 3 months. So his dosage was >>>>>>> changed from >>>>>>> 100 mg to 200 mg. And now, after 3 more months, his PCR went from 8.7 >>>>>>> to >>>>>>> 0.127!! Hopefully in another 3 months he will once again reach >>>>>>> undetectable. >>>>>>> >>>>>>> The downside of his test results is that the liver function >>>>>>> tests have increased a lot. The doctor will not really say that >>>>>>> bosulif is to >>>>>>> blame, but nothing else has changed. Has anyone of you CML warriors >>>>>>> had any >>>>>>> problems with the liver while on TKI's? Was there any treatment to >>>>>>> help the >>>>>>> liver? >>>>>>> >>>>>>> God bless you all. >>>>>>> >>>>>>> Joyce in IL >>>>>>> >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> >>>>>>> [CMLHope] >>>>>>> A support group of >>>>>>> http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You >>>>>>> received this message because you are subscribed to the Google Groups >>>>>>> "CMLHope" >>>>>>> group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To >>>>>>> unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because >>>>>>> you are subscribed to the Google Groups "CMLHope" group. >>>>>>> To unsubscribe from >>>>>>> this group and stop receiving emails from it, send an email to >>>>>>> cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit 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