Dear Jeanie,
I am still here. Sorry to hear about the pancreas issue. That would explain the pain in your side you have been dealing with for so long...let me know what happens. I am OK....worried about Marty and others..had a rough summer health wise, but trying to stay positive, and figure things out with the docs. Was off sprycel for a holiday, now back on for about three weeks..I agree with Joyce, so happy to be on the upside of the grass..we warriors need to keep on uniting...stay stronger together... I will write more soon. Take good care and know that you are loved and thought of....18's Beth -----Original Message----- From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Sep 6, 2016 12:48 pm Subject: Re: [CMLHope] Haven't gotten any e-mail notifications Thanks Joyce, Yes a low fat diet is recommended for pancreatic problems. About 7 months into Ponatinib treatment the pain in my side became bad. One of the side effects is pancreatitis. They say it is caused by drinking and smoking and I don't do either so it has to be the tki. They say you can heal it with diet so I'll take that step but don't know what the doctor will say. See him the end of the month. He might want a ERCP. Don't know if I want that. Blessings to all. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 6, 2016, at 2:24 PM, Joyce Mesnarich <joy...@htc.net> wrote: > > Jeanie, > So sorry to hear of your pancreas problem. I guess we learn something new > every day. I never knew the pancreas had anything to do with fat. I thought > it handled sugar. Whatever, we have to do what the doctors tell us. As time > goes on, I fear that they will find out that most of the TKIs have bad side > effects when used for a longer amount of time. But we are all thankful for > the extra length of time they give CML warriors “on the right side of the > grass”, as they say. I will keep you in my prayers. > Joyce in IL > > >> On Sep 6, 2016, at 6:45 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> Me either. Think everyone is on vacation. >> I had my cat scan. Some bad news. My pancreas has atrophied. Got to cut >> down on fat. I wonder if that is what is causing my pain. I know Ponatinib >> causes pancreatitis. Dr never says anything about it. Everything else was >> the same except for a little fatty liver. >> Hope everyone is good. >> Still no Marty!!!! >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >>> On Sep 5, 2016, at 7:06 PM, 'LadyRx' via CMLHope <cmlhope@googlegroups.com> >>> wrote: >>> >>> I haven't received any notifications in my e-mail for the past 3 weeks or >>> so. Just checking to see if the group is still active. If so, please leave >>> a comment. >>> >>> Thank you! >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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