Thank Beth. That is what I am thinking too. I don't have the symptoms for it but the pain. It got worse when I started Ponatinib. Get better. Love
My Motto: Faith and Pills With Love ๐ 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 6, 2016, at 11:06 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > Dear Jeanie, > > I am still here. Sorry to hear about the pancreas issue. That would explain > the pain in your side you have been dealing with for so long...let me know > what happens. I am OK....worried about Marty and others..had a rough summer > health wise, but trying to stay positive, and figure things out with the > docs. Was off sprycel for a holiday, now back on for about three weeks..I > agree with Joyce, so happy to be on the upside of the grass..we warriors need > to keep on uniting...stay stronger together... I will write more soon. Take > good care and know that you are loved and thought of....18's Beth > > > -----Original Message----- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Tue, Sep 6, 2016 12:48 pm > Subject: Re: [CMLHope] Haven't gotten any e-mail notifications > > Thanks Joyce, > Yes a low fat diet is recommended for pancreatic problems. About 7 months > into Ponatinib treatment the pain in my side became bad. One of the side > effects is pancreatitis. They say it is caused by drinking and smoking and I > don't do either so it has to be the tki. > They say you can heal it with diet so I'll take that step but don't know what > the doctor will say. See him the end of the month. > He might want a ERCP. Don't know if I want that. > Blessings to all. > > My Motto: > Faith and Pills > With Love > ๐ 18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > > On Sep 6, 2016, at 2:24 PM, Joyce Mesnarich <joy...@htc.net> wrote: > > > > Jeanie, > > So sorry to hear of your pancreas problem. I guess we learn something new > > every day. I never knew the pancreas had anything to do with fat. I thought > > it handled sugar. Whatever, we have to do what the doctors tell us. As time > > goes on, I fear that they will find out that most of the TKIs have bad side > > effects when used for a longer amount of time. But we are all thankful for > > the extra length of time they give CML warriors โon the right side of the > > grassโ, as they say. I will keep you in my prayers. > > Joyce in IL > > > > > >> On Sep 6, 2016, at 6:45 AM, 'Jeanie' via CMLHope > >> <cmlhope@googlegroups.com> wrote: > >> > >> Me either. Think everyone is on vacation. > >> I had my cat scan. Some bad news. My pancreas has atrophied. Got to cut > >> down on fat. I wonder if that is what is causing my pain. I know Ponatinib > >> causes pancreatitis. Dr never says anything about it. Everything else was > >> the same except for a little fatty liver. > >> Hope everyone is good. > >> Still no Marty!!!! > >> > >> My Motto: > >> Faith and Pills > >> With Love > >> ๐ 18's > >> Dx 1/2004 CML Leukemia > >> Started Gleevec 2/2004 > >> Started Tasigna 9/2009 > >> Started Sprycel 11/2009 > >> Started Ponatinib 1/2015 > >> Doctor Balducci Moffitt Cancer Center > >> > >>> On Sep 5, 2016, at 7:06 PM, 'LadyRx' via CMLHope > >>> <cmlhope@googlegroups.com> wrote: > >>> > >>> I haven't received any notifications in my e-mail for the past 3 weeks or > >>> so. Just checking to see if the group is still active. If so, please > >>> leave a comment. > >>> > >>> Thank you! > >>> > >>> -- > >>> -- > >>> [CMLHope] > >>> A support group of http://cmlhope.com > >>> ------------------------------------------------- > >>> > >>> You received this message because you are subscribed to the Google Groups > >>> "CMLHope" group. > >>> To post to this group, send email to CMLHope@googlegroups.com > >>> To unsubscribe from this group, send email to > >>> cmlhope-unsubscr...@googlegroups.com > >>> For more options, visit this group at > >>> http://groups.google.com/group/CMLHope > >>> --- > >>> You received this message because you are subscribed to the Google Groups > >>> "CMLHope" group. > >>> To unsubscribe from this group and stop receiving emails from it, send an > >>> email to cmlhope+unsubscr...@googlegroups.com. > >>> For more options, visit https://groups.google.com/d/optout. > >> > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google Groups > >> "CMLHope" group. > >> To post to this group, send email to CMLHope@googlegroups.com > >> To unsubscribe from this group, send email to > >> cmlhope-unsubscr...@googlegroups.com > >> For more options, visit this group at > >> http://groups.google.com/group/CMLHope > >> --- > >> You received this message because you are subscribed to the Google Groups > >> "CMLHope" group. > >> To unsubscribe from this group and stop receiving emails from it, send an > >> email to cmlhope+unsubscr...@googlegroups.com. > >> For more options, visit https://groups.google.com/d/optout. > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to CMLHope@googlegroups.com > > To unsubscribe from this group, send email to > > cmlhope-unsubscr...@googlegroups.com > > For more options, visit this group at http://groups.google.com/group/CMLHope > > --- > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To unsubscribe from this group and stop receiving emails from it, send an > > email to cmlhope+unsubscr...@googlegroups.com. > > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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