Jeanie,
Any restricted diet is a challenge; but if you are motivated it is very
possible. And I know you will be motivated. I think this may, in fact, be the
cause of your pain in the side. Seems almost unthinkable that it took doctors
this long to find your pancreas problem. My husband, Wayne, is still on
Bosulif since Sept 2015. Was on Sprycel before that but had problems with
pleural effusion. Was on vacation about 3 months. But in spite of the fact
that he had been in a deep MMR his PRC counts went up. Dr Talpaz was hoping
maybe he would be one of the lucky ones who could quit treatment. Not so. He
has again achieved MMR. What concerns me is that each test his counts go up a
bit. He is a 0.0321. Dr says not to worry. He is still in MMR. So I will
try to put it out of mind.
We learn so much from each other. Maybe you can enlighten me as to what a ERCP
is.
God bless and keep you.
Joyce in IL
> On Sep 6, 2016, at 1:48 PM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
> wrote:
>
> Thanks Joyce,
> Yes a low fat diet is recommended for pancreatic problems. About 7 months
> into Ponatinib treatment the pain in my side became bad. One of the side
> effects is pancreatitis. They say it is caused by drinking and smoking and I
> don't do either so it has to be the tki.
> They say you can heal it with diet so I'll take that step but don't know what
> the doctor will say. See him the end of the month.
> He might want a ERCP. Don't know if I want that.
> Blessings to all.
>
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>
>> On Sep 6, 2016, at 2:24 PM, Joyce Mesnarich <joy...@htc.net> wrote:
>>
>> Jeanie,
>> So sorry to hear of your pancreas problem. I guess we learn something new
>> every day. I never knew the pancreas had anything to do with fat. I
>> thought it handled sugar. Whatever, we have to do what the doctors tell us.
>> As time goes on, I fear that they will find out that most of the TKIs have
>> bad side effects when used for a longer amount of time. But we are all
>> thankful for the extra length of time they give CML warriors “on the right
>> side of the grass”, as they say. I will keep you in my prayers.
>> Joyce in IL
>>
>>
>>> On Sep 6, 2016, at 6:45 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com>
>>> wrote:
>>>
>>> Me either. Think everyone is on vacation.
>>> I had my cat scan. Some bad news. My pancreas has atrophied. Got to cut
>>> down on fat. I wonder if that is what is causing my pain. I know
>>> Ponatinib causes pancreatitis. Dr never says anything about it.
>>> Everything else was the same except for a little fatty liver.
>>> Hope everyone is good.
>>> Still no Marty!!!!
>>>
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> 🐠18's
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/2015
>>> Doctor Balducci Moffitt Cancer Center
>>>
>>>> On Sep 5, 2016, at 7:06 PM, 'LadyRx' via CMLHope
>>>> <cmlhope@googlegroups.com> wrote:
>>>>
>>>> I haven't received any notifications in my e-mail for the past 3 weeks or
>>>> so. Just checking to see if the group is still active. If so, please leave
>>>> a comment.
>>>>
>>>> Thank you!
>>>>
>>>> --
>>>> --
>>>> [CMLHope]
>>>> A support group of http://cmlhope.com
>>>> -------------------------------------------------
>>>>
>>>> You received this message because you are subscribed to the Google Groups
>>>> "CMLHope" group.
>>>> To post to this group, send email to CMLHope@googlegroups.com
>>>> To unsubscribe from this group, send email to
>>>> cmlhope-unsubscr...@googlegroups.com
>>>> For more options, visit this group at
>>>> http://groups.google.com/group/CMLHope
>>>> ---
>>>> You received this message because you are subscribed to the Google Groups
>>>> "CMLHope" group.
>>>> To unsubscribe from this group and stop receiving emails from it, send an
>>>> email to cmlhope+unsubscr...@googlegroups.com.
>>>> For more options, visit https://groups.google.com/d/optout.
>>>
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -------------------------------------------------
>>>
>>> You received this message because you are subscribed to the Google Groups
>>> "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
>>> To unsubscribe from this group, send email to
>>> cmlhope-unsubscr...@googlegroups.com
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> ---
>>> You received this message because you are subscribed to the Google Groups
>>> "CMLHope" group.
>>> To unsubscribe from this group and stop receiving emails from it, send an
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>> For more options, visit https://groups.google.com/d/optout.
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -------------------------------------------------
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> ---
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
--
--
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
---
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.
