Dear Ken,

Welcome back. 17 years and still going strong!  Thank you for sharing your 
story...what a  wonderful gift you shared with all of us here. People here are 
very kind and also, very resilient. Many of us have had additional medical 
challenges because of our treatments. We are simply  more vulnerable to other 
issues happening over time...I guess our genetics combined with the effects of 
the long term use of these TKI's...

I do not know what your other health issues are, but I agree with Susan. It's 
worth putting in a call to Dr. Brian Druker in Portland Oregon and just seeing 
his thoughts 17 years later...so much progress has been made and many people 
find one TKI over another is easier for them to tolerate.   Dr. Druker's number 
is: 503-494-5596  My best to you...




Beth


-----Original Message-----
From: 'Susan Rosenthal' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Aug 8, 2017 6:49 am
Subject: Re: [CMLHope] Gleevec

Contact Dr. Druker in Portland, Oregon.

Hugs,
Susan Rosenthal

> On Aug 8, 2017, at 6:57 AM, Ken Roberson <krobers...@mindspring.com> wrote:
> 
> Good morning everyone,
> I just discovered that this site is still active.
> I have been on Gleevec for 17 years with good results, but have had 
> additional medical challenges.
> I was a member of the original participants for the STI571(Gleevec) at Johns 
> Hopkins Hospitals in Baltimore after trying everything else on the market for 
> CML with no success.
> I am now 75 and thanks to God, family, and numerous medical staff I have been 
> around long enough to have become a grandfather.
> Very best wishes to everyone in their battle with cancer.
> Ken Roberson
> 
> Sent from my iPad
> 
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