Hi Beth I have really missed your uplifts but knew you were going through some trials and tribulations. My heartbeat is down to 40 and sometimes lower but not too concerned yet. I had a three day stay in hospital to see if they could find out the source of the pain in my side. No luck. No my onc wants to try mrcp where they take a closer look at pancreas and ect. Then if they find something you wonder if you want to do something else. Hang in there Beth. Each day at a time. ❤️
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Aug 8, 2017, at 11:30 PM, Richard H <rbhuffm...@gmail.com> wrote: > > Thanks for the update. I hope all keeps going well. > > No preaching today, you are under control and I hope you continue to get > better. > > Richard H. > >> On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote: >> Dear Susan, Jeanie, Marty, Richard, Greenie et all, >> >> So sorry I have not been communicative for a long while. I am coming up >> after a really hard year physically and with many losses...sifting through >> 6000 emails...I realize how much I have missed just our groups banter, and >> love.... >> >> Hope each one of you is enjoying moments of sunshine...and holding on to the >> love that is in our group. I rely so often on the stories of others to >> inspire me, give me perspective...to hold hope for a better tomorrow and to >> stand tall in the belief that "This too shall pass" as my dad used to >> say...when things were really bad.. I had a rough year starting last >> September with heart issues, then got worse in December...and stayed >> struggling through the spring...starting to feel a bit stronger....still >> vulnerable, but fighting spirit is back...and I am here...to see the >> hummingbirds out my window...flox is in full bloom....75 degrees and sunny >> today.....so life is good for now...later today seeing the cardiologist to >> swap medicines...then oncologist Friday. CPK stil supper high so muscle >> continues to waste..I hardly recognize myself and its affected my >> kidneys..all the protein going through them...Will get blood work done in a >> couple of weeks at U of C...last test in June had cancer showing...at low >> levels...had to go off for a drug holiday because of toxicity...so only back >> on for three weeks. We shall see how I am doing....I am seeing Dr. Druker in >> October...he always makes me feel hopeful and calm....he has a way about him >> that invites this...and for which I am always so grateful.. >> >> I know each of you has had your struggles....physically and emotionally...I >> think of you often and pray for each of you every night....Greenie, >> especially you and your wife,....this first year of grieving Derek...your >> anniversary.....so hard to bare...I m holding 7 clients who have lost adult >> children in my practice. I brought them together in a group to so they could >> meet one another and share their stories, introduce their children and share >> their grief. >> >> I thought of you and wondered if something like that might be helpful to >> you..I know there are many supports in your area through local hospices and >> I think Health Park...God willing I will be down by you in December as I was >> supposed to be last year before everything erupted.. >> Hope to one day give you a big hug. >> >> and to the rest of you..love, hugs and 18's....it feels good to write >> something... >> >> >> Beth > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
