Dear Susan, Jeanie, Marty, Richard, Greenie et all,
So sorry I have not been communicative for a long while. I am coming up after a really hard year physically and with many losses...sifting through 6000 emails...I realize how much I have missed just our groups banter, and love.... Hope each one of you is enjoying moments of sunshine...and holding on to the love that is in our group. I rely so often on the stories of others to inspire me, give me perspective...to hold hope for a better tomorrow and to stand tall in the belief that "This too shall pass" as my dad used to say...when things were really bad.. I had a rough year starting last September with heart issues, then got worse in December...and stayed struggling through the spring...starting to feel a bit stronger....still vulnerable, but fighting spirit is back...and I am here...to see the hummingbirds out my window...flox is in full bloom....75 degrees and sunny today.....so life is good for now...later today seeing the cardiologist to swap medicines...then oncologist Friday. CPK stil supper high so muscle continues to waste..I hardly recognize myself and its affected my kidneys..all the protein going through them...Will get blood work done in a couple of weeks at U of C...last test in June had cancer showing...at low levels...had to go off for a drug holiday because of toxicity...so only back on for three weeks. We shall see how I am doing....I am seeing Dr. Druker in October...he always makes me feel hopeful and calm....he has a way about him that invites this...and for which I am always so grateful.. I know each of you has had your struggles....physically and emotionally...I think of you often and pray for each of you every night....Greenie, especially you and your wife,....this first year of grieving Derek...your anniversary.....so hard to bare...I m holding 7 clients who have lost adult children in my practice. I brought them together in a group to so they could meet one another and share their stories, introduce their children and share their grief. I thought of you and wondered if something like that might be helpful to you..I know there are many supports in your area through local hospices and I think Health Park...God willing I will be down by you in December as I was supposed to be last year before everything erupted.. Hope to one day give you a big hug. and to the rest of you..love, hugs and 18's....it feels good to write something... Beth -----Original Message----- From: 'Susan Rosenthal' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Aug 8, 2017 6:49 am Subject: Re: [CMLHope] Gleevec Contact Dr. Druker in Portland, Oregon. Hugs, Susan Rosenthal > On Aug 8, 2017, at 6:57 AM, Ken Roberson <krobers...@mindspring.com> wrote: > > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had > additional medical challenges. > I was a member of the original participants for the STI571(Gleevec) at Johns > Hopkins Hospitals in Baltimore after trying everything else on the market for > CML with no success. > I am now 75 and thanks to God, family, and numerous medical staff I have been > around long enough to have become a grandfather. > Very best wishes to everyone in their battle with cancer. > Ken Roberson > > Sent from my iPad > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
