Thanks Susan,

No dialysis. Just navigating muscle deterioration at an accelerated rate which 
makes it hard to move, let alone exercise...just a significant rough patch, but 
trying to navigate it the best I can. I had little to give anyone for a while, 
but feel better able to be a contributing part of our community again. I know 
many do not write, but feel less alone just reading..I just became one of those 
people for a time.. I will try to be better about speaking up when I am 
struggling. 


Love to all,


18's Beth



-----Original Message-----
From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com>
To: rbhuffman1 <rbhuffm...@gmail.com>; cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Aug 9, 2017 6:38 pm
Subject: Re: [CMLHope] Gleevec



Beth, my heart goes out to you from all you've gone through since last 
September. You have always been a great encourager to all of us.
I am sure I speak for all in saying we missed you tremendously and hope you 
will have no more setbacks. Obviously those kidneys are so important to 
function properly. I hope you've not had to go on dialysis?
Hoping and believing you continue to get better. You are so right about Dr. 
Druker and glad you are going to see him.  Hang in there, we really really love 
you!
Richard, trying hard not to preach! Prayers, though!
18's, xoxo
Susan Z.


On Tuesday, August 8, 2017 Richard H <rbhuffm...@gmail.com> wrote:


Thanks for the update.  I hope all keeps going well.


No preaching today, you are under control and I hope you continue to get better.


Richard H.

On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote:
Dear Susan, Jeanie, Marty, Richard, Greenie et all, 


So sorry I have not been communicative for a long while. I am coming up after a 
really hard year physically and with many losses...sifting through 6000 
emails...I realize how much I have missed just our groups banter, and love....


Hope each one of you is enjoying moments of sunshine...and holding on to the 
love that is in our group. I rely so often on the stories of others to inspire 
me, give me perspective...to hold hope for a better tomorrow and to stand tall 
in the belief that "This too shall pass" as my dad used to say...when things 
were really bad..  I had a rough year starting last September with heart 
issues, then got worse in December...and stayed struggling through the 
spring...starting to feel a bit stronger....still vulnerable, but fighting 
spirit is back...and I am here...to see the hummingbirds out my window...flox 
is in full bloom....75 degrees  and sunny today.....so life is good for 
now...later today seeing the cardiologist to swap medicines...then oncologist 
Friday. CPK stil supper high so muscle continues to waste..I hardly recognize 
myself and its affected my kidneys..all the protein going through them...Will 
get blood work done in a couple of weeks at U of C...last test in June had 
cancer showing...at low levels...had to go off for a drug holiday because of 
toxicity...so only back on for three weeks. We shall see how I am doing....I am 
seeing Dr. Druker in October...he always makes me feel hopeful and calm....he 
has a way about him that invites this...and for which I am always so grateful..


I know each of you has had your struggles....physically and emotionally...I 
think of you often and pray for each of you every night....Greenie, especially 
you and your wife,....this first year of grieving Derek...your 
anniversary.....so hard to bare...I m holding 7 clients who have lost adult 
children in my practice. I brought them together in a group to so they could 
meet one another and share their stories, introduce their children and share 
their grief.
 
I thought of you and wondered if something like that might be helpful to you..I 
know there are many supports in your area through local hospices and I think 
Health Park...God willing I will be down by you in December as I was supposed 
to be last year before everything erupted..
Hope to one day give you a big hug. 


and to the rest of you..love, hugs and 18's....it feels good to write 
something...




Beth






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