Thanks Susan,
No dialysis. Just navigating muscle deterioration at an accelerated rate which makes it hard to move, let alone exercise...just a significant rough patch, but trying to navigate it the best I can. I had little to give anyone for a while, but feel better able to be a contributing part of our community again. I know many do not write, but feel less alone just reading..I just became one of those people for a time.. I will try to be better about speaking up when I am struggling. Love to all, 18's Beth -----Original Message----- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: rbhuffman1 <rbhuffm...@gmail.com>; cmlhope <cmlhope@googlegroups.com> Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you tremendously and hope you will have no more setbacks. Obviously those kidneys are so important to function properly. I hope you've not had to go on dialysis? Hoping and believing you continue to get better. You are so right about Dr. Druker and glad you are going to see him. Hang in there, we really really love you! Richard, trying hard not to preach! Prayers, though! 18's, xoxo Susan Z. On Tuesday, August 8, 2017 Richard H <rbhuffm...@gmail.com> wrote: Thanks for the update. I hope all keeps going well. No preaching today, you are under control and I hope you continue to get better. Richard H. On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote: Dear Susan, Jeanie, Marty, Richard, Greenie et all, So sorry I have not been communicative for a long while. I am coming up after a really hard year physically and with many losses...sifting through 6000 emails...I realize how much I have missed just our groups banter, and love.... Hope each one of you is enjoying moments of sunshine...and holding on to the love that is in our group. I rely so often on the stories of others to inspire me, give me perspective...to hold hope for a better tomorrow and to stand tall in the belief that "This too shall pass" as my dad used to say...when things were really bad.. I had a rough year starting last September with heart issues, then got worse in December...and stayed struggling through the spring...starting to feel a bit stronger....still vulnerable, but fighting spirit is back...and I am here...to see the hummingbirds out my window...flox is in full bloom....75 degrees and sunny today.....so life is good for now...later today seeing the cardiologist to swap medicines...then oncologist Friday. CPK stil supper high so muscle continues to waste..I hardly recognize myself and its affected my kidneys..all the protein going through them...Will get blood work done in a couple of weeks at U of C...last test in June had cancer showing...at low levels...had to go off for a drug holiday because of toxicity...so only back on for three weeks. We shall see how I am doing....I am seeing Dr. Druker in October...he always makes me feel hopeful and calm....he has a way about him that invites this...and for which I am always so grateful.. I know each of you has had your struggles....physically and emotionally...I think of you often and pray for each of you every night....Greenie, especially you and your wife,....this first year of grieving Derek...your anniversary.....so hard to bare...I m holding 7 clients who have lost adult children in my practice. I brought them together in a group to so they could meet one another and share their stories, introduce their children and share their grief. I thought of you and wondered if something like that might be helpful to you..I know there are many supports in your area through local hospices and I think Health Park...God willing I will be down by you in December as I was supposed to be last year before everything erupted.. Hope to one day give you a big hug. and to the rest of you..love, hugs and 18's....it feels good to write something... Beth -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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