I think it came through upside down. dg
In a message dated 12/22/2017 7:44:34 A.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Here is a copy of my BCR-ABL results.
In a message dated 12/22/2017 7:23:33 A.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
What is your bcr/abl?
Sent from my iPad
On Dec 22, 2017, at 5:11 AM, cmlhope@googlegroups.com wrote:
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* _Questions,_ (mip://14e890a8/default.html#group_thread_0) - 4
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(http://groups.google.com/group/cmlhope/t/353a872ab609d842?utm_source=digest&utm_medium=email)
myvet...@aol.com: Dec 21 07:10AM -0500
To all of my CML friends and care givers.
I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood
work. A week later she called me to tell me that my Hemoglobin was down to
10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is
38.0 - 50 %.
She wants me to get a Bone Marrow test here in Florida because the
airfare
to Chicago would be $601.00. That's not going to happen. I'm also taking
Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9.
She sent my other cancer Doctor down here a fax as to what she wants. I
have and appointment set for Jan. 2 and talk to him about what to do. (I'm
worried). She made a note to him that I also have CRI which may be
Contributory.
So back in 2010 my counts on these two item were Hemoglobin 13.3 and
Hematocrit was 39.0.
So back in 2015 my counts on these two items were Hemoglobin 12.0 and
Hematocrit was 36.1. So the counts are coming down and I think it's from
the
Gleevec.
My white count is find at 5.8). Iron was 88 (50-212), Iron binding
capacity was 281 (250 - 450).
So anyone that may have some answers that may make me feel better just
hop
right it and I will very happy to hear from you.
ALSO, I don't know now to do it but AOL is no longer going to be as of Jan
15. My new email address is (myvet...@comcast.net) and it's free for me
and much better.
Any feedback would be deeply appreciated.
Thank you all and have a Very Happy and Safe Holiday.
Greenie for South Fort Myers, FL.
Marty Gartenberg <wa2...@gmail.com>: Dec 21 11:31AM -0500
Hi Greenie,
First of all, you mention that you are worried. Why may i ask are you so
worried? When people worry about things that they have little or no control
over then it not only effects your mind but also your body. I know all
about this because that is exactly what i used to do and i learned to
direct my mind in more productive ways. Now just try to relax and get
yourself going in the right direction.
Now you mention about CRI so read this..
*CRI* (color rendering index) is a measure of how accurately a light source
illuminates objects' true colors. Our LED lights have *CRI* values of up to
98, indicating that our LED lights are able to produce white light that
approximates halogen or incandescent lighting and natural daylight.
It however has some effect on your kidneys because if they are having
problems than it is a very simple thing to just go to a Nephrologist and
see what is happening and why.
As you mentioned the normal Hemoglobin count for women should be from
around 13 to 17 however not necessarily for men because men don't have
their time of the month as woman do, so men require a bit less of
Hemoglobin.
Now a count of 10.7 shows that you are enemic and that can from a verity
of
different things. One being the effects from your TKI being Gleevic which i
think may be the cause, now mind you I am not a doctor but someone that
does a lot of research into things that i have already been through.
Another thing would be kidney problems which i kind of doubt because your
doctors haven't mentioned it. Do you know what your
*Levels* of *creatinine* in the blood reflect both the amount of muscle a
person has and their amount of kidney function. Most men with normal kidney
function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of
*creatinine*. Most women with normal kidney function have between 0.5 to
1.1 mg/dL of *creatinine*..
My Creatinine level was 8.2 before i started on my dialysis and i had to go
onto dialysis which lasted for four years. Then i was able to get a kidney
transplant from a 20 year old deceased man who was anonymous, and about
two weeks later it dropped down to 4.1 and kept dropping to where it is
now
at .8 and it now stays there. Remember, i have only one kidney while most
other people have two kidneys so i know that having only one kidney is
doing very well for me, and no more dialysis for me anymore.
What you did mention is that your counts are now at "My white count is find
at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 -
450)". Which
are quite acceptable and very good for you.
And speaking about your kidneys let me give you some information. When my
kidneys started to fail i noticed that my Hemoglobin also was dropping
especially after i began to receive dialysis. They were at 14 then would
gradually drop to being 9.9 and that was the magic bullet that triggered
that i would be able to start receiving Procrit or Epogin injections which
brought my Hemoglobin to usually 11 and it would take about a week. Then a
few weeks later another shot and so on. The reason why is that your kidneys
produce a *hormone that is sent to your bone marrow that stimulates Red
Blood cells into your bone marrow.
**Erythropoietin* (*EPO*) is a hormone produced by the kidney that promotes
the formation of red blood cells by the bone marrow. The kidney cells that
make *erythropoietin* are sensitive to low oxygen levels in the blood that
travels through the kidney.
This is what happened to me so i know what i am talking about. Ever since i
received my kidney transplant about two and a half years ago my Hemoglobin
has gotten to be around 14
Now i am not saying that you have any problems with your kidneys but i am
puzzled why did your doctor mention about CRI? As I mentioned why not go
to see a Nephrologist . Couldn't hurt.
Another suggestion that you have already mentioned, and because you have a
smart doctor looking after you why spend over $600 to fly to Chicago when
you have loads of very fine doctors in Florida especially in your area?
Now I have given you a lot of useful information and hopefully it will
help
you and do you know why? It's because i was there and had to go through all
of this and i learned what i had to do, and besides your worth it! Yes you
are. Just as was my friend Lottie. She did a lot of research as well in her
time which i never forgot... In fact so did Zavie,
Now finally, since AOL is going out then you already did the right thing by
switching over to another (FREE, I love that four letter F letter word)
internet provider. You also may want to get another F word like gmail just
in case as a backup.
Please, please Greenie try to stop worrying, just take it one day at a
time. You know it will all work out.
18's,
Marty
On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope <
myvet...@aol.com: Dec 21 04:28PM -0500
Marty, I want to thank you for your fast reply, I hear you. I do have a
Nephrologist and he had me get some blood work last month and he seems to
be
O.K. with the results. I do have the paper work and will scan it and send
it out so you can check it out. I want to thank you so much, you have
made me feel so much better and I will listen to what you wrote me. Again
I
want to thank you.
Greenie
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,
wa2...@gmail.com writes:
Hi Greenie,
First of all, you mention that you are worried. Why may i ask are you so
worried? When people worry about things that they have little or no
control
over then it not only effects your mind but also your body. I know all
about
this because that is exactly what i used to do and i learned to direct my
mind in more productive ways. Now just try to relax and get yourself going
in the right direction.
Now you mention about CRI so read this..
CRI (color rendering index) is a measure of how accurately a light source
illuminates objects' true colors. Our LED lights have CRI values of up to
98, indicating that our LED lights are able to produce white light that
approximates halogen or incandescent lighting and natural daylight.
It however has some effect on your kidneys because if they are having
problems than it is a very simple thing to just go to a Nephrologist and
see
what is happening and why.
As you mentioned the normal Hemoglobin count for women should be from
around 13 to 17 however not necessarily for men because men don't have
their
time of the month as woman do, so men require a bit less of Hemoglobin.
Now a count of 10.7 shows that you are enemic and that can from a verity
of different things. One being the effects from your TKI being Gleevic
which
i think may be the cause, now mind you I am not a doctor but someone that
does a lot of research into things that i have already been through.
Another thing would be kidney problems which i kind of doubt because your
doctors haven't mentioned it. Do you know what your
Levels of creatinine in the blood reflect both the amount of muscle a
person has and their amount of kidney function. Most men with normal
kidney
function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of
creatinine. Most women with normal kidney function have between 0.5 to 1.1
mg/dL
of creatinine..
My Creatinine level was 8.2 before i started on my dialysis and i had to
go onto dialysis which lasted for four years. Then i was able to get a
kidney transplant from a 20 year old deceased man who was anonymous, and
about
two weeks later it dropped down to 4.1 and kept dropping to where it is
now at .8 and it now stays there. Remember, i have only one kidney while
most other people have two kidneys so i know that having only one kidney
is
doing very well for me, and no more dialysis for me anymore.
What you did mention is that your counts are now at "My white count is
find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 -
450)". Which are quite acceptable and very good for you.
And speaking about your kidneys let me give you some information. When my
kidneys started to fail i noticed that my Hemoglobin also was dropping
especially after i began to receive dialysis. They were at 14 then would
gradually drop to being 9.9 and that was the magic bullet that triggered
that i
would be able to start receiving Procrit or Epogin injections which
brought
my Hemoglobin to usually 11 and it would take about a week. Then a few
weeks later another shot and so on. The reason why is that your kidneys
produce
a *hormone that is sent to your bone marrow that stimulates Red Blood
cells into your bone marrow.
*Erythropoietin (EPO) is a hormone produced by the kidney that promotes
the formation of red blood cells by the bone marrow. The kidney cells that
make erythropoietin are sensitive to low oxygen levels in the blood that
travels through the kidney.
This is what happened to me so i know what i am talking about. Ever since
i received my kidney transplant about two and a half years ago my
Hemoglobin has gotten to be around 14
Now i am not saying that you have any problems with your kidneys but i am
puzzled why did your doctor mention about CRI? As I mentioned why not go
to see a Nephrologist . Couldn't hurt.
Another suggestion that you have already mentioned, and because you have a
smart doctor looking after you why spend over $600 to fly to Chicago when
you have loads of very fine doctors in Florida especially in your area?
Now I have given you a lot of useful information and hopefully it will
help you and do you know why? It's because i was there and had to go
through
all of this and i learned what i had to do, and besides your worth it! Yes
you are. Just as was my friend Lottie. She did a lot of research as well
in
her time which i never forgot... In fact so did Zavie,
Now finally, since AOL is going out then you already did the right thing
by switching over to another (FREE, I love that four letter F letter word)
internet provider. You also may want to get another F word like gmail just
in case as a backup.
Please, please Greenie try to stop worrying, just take it one day at a
time. You know it will all work out.
18's,
Marty
On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope
<cmlhope@googlegroups.com> wrote:
To all of my CML friends and care givers.
I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood
work. A week later she called me to tell me that my Hemoglobin was down to
10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is
38.0 - 50 %.
She wants me to get a Bone Marrow test here in Florida because the
airfare
to Chicago would be $601.00. That's not going to happen. I'm also taking
Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9.
She sent my other cancer Doctor down here a fax as to what she wants. I
have and appointment set for Jan. 2 and talk to him about what to do. (I'm
worried). She made a note to him that I also have CRI which may be
Contributory.
So back in 2010 my counts on these two item were Hemoglobin 13.3 and
Hematocrit was 39.0.
So back in 2015 my counts on these two items were Hemoglobin 12.0 and
Hematocrit was 36.1. So the counts are coming down and I think it's from
the
Gleevec.
My white count is find at 5.8). Iron was 88 (50-212), Iron binding
capacity was 281 (250 - 450).
So anyone that may have some answers that may make me feel better just
hop
right it and I will very happy to hear from you.
ALSO, I don't know now to do it but AOL is no longer going to be as of Jan
15. My new email address is (myvet...@comcast.net) and it's free for me
and much better.
Any feedback would be deeply appreciated.
Thank you all and have a Very Happy and Safe Holiday.
Greenie for South Fort Myers, FL.
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Marty Gartenberg <wa2...@gmail.com>: Dec 21 06:56PM -0500
Listen Greenie,
This is what i do because of a promise that i once made to GOD. Let me
tell
you about this.
When i was about to receive my total body radiation almost 30 years ago,
just before they were about to close and lock that radiation chamber door
i got down on my knees clasped my hands in front of me and prayed to GOD
asking HIM if he would spare me i would help people that were in my
situation that i would try to help them. So far i have helped 1,286 people
in the past 30 years, and wrote my journal about each and every one of
them. This will never be published because of confidentiality reasons, but
on occasion i will send some of them parts of my book in order to try and
help them.
Listen i am no saint just a plain human being but someone that once made a
promise to GOD and i am still here after many many death defying things
that i have gone trough. And that is why i do what i promised to do. I hope
that you understand why i do what i do...
There is also why i write 18's when ever i end any posts that i make,
because that is what i believe. 18's to me represents LIFE.
If you care to send me your personal email address i would like to send you
something. Mine is wa2yyx@gmail,com
18's,
Marty
On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope <
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