On Friday, December 22, 2017, 'Dr. Francis Farrell' via CMLHope < cmlhope@googlegroups.com> wrote:
> What is your bcr/abl? > > Sent from my iPad > > On Dec 22, 2017, at 5:11 AM, cmlhope@googlegroups.com wrote: > > cmlhope@googlegroups.com > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> > Google > Groups > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > Topic digest > View all topics > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> > > - Questions, <#m_8872065407184338956_group_thread_0> - 4 Updates > > Questions, > <http://groups.google.com/group/cmlhope/t/353a872ab609d842?utm_source=digest&utm_medium=email> > myvet...@aol.com: Dec 21 07:10AM -0500 > > To all of my CML friends and care givers. > > I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood > work. A week later she called me to tell me that my Hemoglobin was down to > 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is > 38.0 - 50 %. > She wants me to get a Bone Marrow test here in Florida because the airfare > to Chicago would be $601.00. That's not going to happen. I'm also taking > Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9. > > She sent my other cancer Doctor down here a fax as to what she wants. I > have and appointment set for Jan. 2 and talk to him about what to do. (I'm > worried). She made a note to him that I also have CRI which may be > Contributory. > > So back in 2010 my counts on these two item were Hemoglobin 13.3 and > Hematocrit was 39.0. > > So back in 2015 my counts on these two items were Hemoglobin 12.0 and > Hematocrit was 36.1. So the counts are coming down and I think it's from > the > Gleevec. > > My white count is find at 5.8). Iron was 88 (50-212), Iron binding > capacity was 281 (250 - 450). > > So anyone that may have some answers that may make me feel better just hop > right it and I will very happy to hear from you. > > ALSO, I don't know now to do it but AOL is no longer going to be as of Jan > 15. My new email address is (myvet...@comcast.net) and it's free for me > and much better. > > Any feedback would be deeply appreciated. > > Thank you all and have a Very Happy and Safe Holiday. > > Greenie for South Fort Myers, FL. > Marty Gartenberg <wa2...@gmail.com>: Dec 21 11:31AM -0500 > > Hi Greenie, > > First of all, you mention that you are worried. Why may i ask are you so > worried? When people worry about things that they have little or no control > over then it not only effects your mind but also your body. I know all > about this because that is exactly what i used to do and i learned to > direct my mind in more productive ways. Now just try to relax and get > yourself going in the right direction. > > Now you mention about CRI so read this.. > > *CRI* (color rendering index) is a measure of how accurately a light source > illuminates objects' true colors. Our LED lights have *CRI* values of up to > 98, indicating that our LED lights are able to produce white light that > approximates halogen or incandescent lighting and natural daylight. > > It however has some effect on your kidneys because if they are having > problems than it is a very simple thing to just go to a Nephrologist and > see what is happening and why. > > As you mentioned the normal Hemoglobin count for women should be from > around 13 to 17 however not necessarily for men because men don't have > their time of the month as woman do, so men require a bit less of > Hemoglobin. > > Now a count of 10.7 shows that you are enemic and that can from a verity of > different things. One being the effects from your TKI being Gleevic which i > think may be the cause, now mind you I am not a doctor but someone that > does a lot of research into things that i have already been through. > > Another thing would be kidney problems which i kind of doubt because your > doctors haven't mentioned it. Do you know what your > > *Levels* of *creatinine* in the blood reflect both the amount of muscle a > person has and their amount of kidney function. Most men with normal kidney > function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of > *creatinine*. Most women with normal kidney function have between 0.5 to > 1.1 mg/dL of *creatinine*.. > > My Creatinine level was 8.2 before i started on my dialysis and i had to go > onto dialysis which lasted for four years. Then i was able to get a kidney > transplant from a 20 year old deceased man who was anonymous, and about > two weeks later it dropped down to 4.1 and kept dropping to where it is now > at .8 and it now stays there. Remember, i have only one kidney while most > other people have two kidneys so i know that having only one kidney is > doing very well for me, and no more dialysis for me anymore. > > What you did mention is that your counts are now at "My white count is find > at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - > 450)". Which > are quite acceptable and very good for you. > > And speaking about your kidneys let me give you some information. When my > kidneys started to fail i noticed that my Hemoglobin also was dropping > especially after i began to receive dialysis. They were at 14 then would > gradually drop to being 9.9 and that was the magic bullet that triggered > that i would be able to start receiving Procrit or Epogin injections which > brought my Hemoglobin to usually 11 and it would take about a week. Then a > few weeks later another shot and so on. The reason why is that your kidneys > produce a *hormone that is sent to your bone marrow that stimulates Red > Blood cells into your bone marrow. > **Erythropoietin* (*EPO*) is a hormone produced by the kidney that promotes > the formation of red blood cells by the bone marrow. The kidney cells that > make *erythropoietin* are sensitive to low oxygen levels in the blood that > travels through the kidney. > > This is what happened to me so i know what i am talking about. Ever since i > received my kidney transplant about two and a half years ago my Hemoglobin > has gotten to be around 14 > > Now i am not saying that you have any problems with your kidneys but i am > puzzled why did your doctor mention about CRI? As I mentioned why not go > to see a Nephrologist . Couldn't hurt. > > Another suggestion that you have already mentioned, and because you have a > smart doctor looking after you why spend over $600 to fly to Chicago when > you have loads of very fine doctors in Florida especially in your area? > > Now I have given you a lot of useful information and hopefully it will help > you and do you know why? It's because i was there and had to go through all > of this and i learned what i had to do, and besides your worth it! Yes you > are. Just as was my friend Lottie. She did a lot of research as well in her > time which i never forgot... In fact so did Zavie, > > Now finally, since AOL is going out then you already did the right thing by > switching over to another (FREE, I love that four letter F letter word) > internet provider. You also may want to get another F word like gmail just > in case as a backup. > > Please, please Greenie try to stop worrying, just take it one day at a > time. You know it will all work out. > > 18's, > > Marty > > On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope < > myvet...@aol.com: Dec 21 04:28PM -0500 > > Marty, I want to thank you for your fast reply, I hear you. I do have a > Nephrologist and he had me get some blood work last month and he seems to > be > O.K. with the results. I do have the paper work and will scan it and send > it out so you can check it out. I want to thank you so much, you have > made me feel so much better and I will listen to what you wrote me. Again > I > want to thank you. > > Greenie > > > In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, > wa2...@gmail.com writes: > > Hi Greenie, > > > First of all, you mention that you are worried. Why may i ask are you so > worried? When people worry about things that they have little or no > control > over then it not only effects your mind but also your body. I know all > about > this because that is exactly what i used to do and i learned to direct my > mind in more productive ways. Now just try to relax and get yourself going > in the right direction. > > > Now you mention about CRI so read this.. > > > CRI (color rendering index) is a measure of how accurately a light source > illuminates objects' true colors. Our LED lights have CRI values of up to > 98, indicating that our LED lights are able to produce white light that > approximates halogen or incandescent lighting and natural daylight. > > > > It however has some effect on your kidneys because if they are having > problems than it is a very simple thing to just go to a Nephrologist and > see > what is happening and why. > > > As you mentioned the normal Hemoglobin count for women should be from > around 13 to 17 however not necessarily for men because men don't have > their > time of the month as woman do, so men require a bit less of Hemoglobin. > > > Now a count of 10.7 shows that you are enemic and that can from a verity > of different things. One being the effects from your TKI being Gleevic > which > i think may be the cause, now mind you I am not a doctor but someone that > does a lot of research into things that i have already been through. > > > Another thing would be kidney problems which i kind of doubt because your > doctors haven't mentioned it. Do you know what your > > > Levels of creatinine in the blood reflect both the amount of muscle a > person has and their amount of kidney function. Most men with normal > kidney > function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of > creatinine. Most women with normal kidney function have between 0.5 to 1.1 > mg/dL > of creatinine.. > > > My Creatinine level was 8.2 before i started on my dialysis and i had to > go onto dialysis which lasted for four years. Then i was able to get a > kidney transplant from a 20 year old deceased man who was anonymous, and > about > two weeks later it dropped down to 4.1 and kept dropping to where it is > now at .8 and it now stays there. Remember, i have only one kidney while > most other people have two kidneys so i know that having only one kidney > is > doing very well for me, and no more dialysis for me anymore. > > > What you did mention is that your counts are now at "My white count is > find at 5.8). Iron was 88 (50-212), Iron binding capacity was 281 (250 - > 450)". Which are quite acceptable and very good for you. > > > And speaking about your kidneys let me give you some information. When my > kidneys started to fail i noticed that my Hemoglobin also was dropping > especially after i began to receive dialysis. They were at 14 then would > gradually drop to being 9.9 and that was the magic bullet that triggered > that i > would be able to start receiving Procrit or Epogin injections which > brought > my Hemoglobin to usually 11 and it would take about a week. Then a few > weeks later another shot and so on. The reason why is that your kidneys > produce > a *hormone that is sent to your bone marrow that stimulates Red Blood > cells into your bone marrow. > *Erythropoietin (EPO) is a hormone produced by the kidney that promotes > the formation of red blood cells by the bone marrow. The kidney cells that > make erythropoietin are sensitive to low oxygen levels in the blood that > travels through the kidney. > > > This is what happened to me so i know what i am talking about. Ever since > i received my kidney transplant about two and a half years ago my > Hemoglobin has gotten to be around 14 > > > Now i am not saying that you have any problems with your kidneys but i am > puzzled why did your doctor mention about CRI? As I mentioned why not go > to see a Nephrologist . Couldn't hurt. > > > Another suggestion that you have already mentioned, and because you have a > smart doctor looking after you why spend over $600 to fly to Chicago when > you have loads of very fine doctors in Florida especially in your area? > > > Now I have given you a lot of useful information and hopefully it will > help you and do you know why? It's because i was there and had to go > through > all of this and i learned what i had to do, and besides your worth it! Yes > you are. Just as was my friend Lottie. She did a lot of research as well > in > her time which i never forgot... In fact so did Zavie, > > > Now finally, since AOL is going out then you already did the right thing > by switching over to another (FREE, I love that four letter F letter word) > internet provider. You also may want to get another F word like gmail just > in case as a backup. > > > Please, please Greenie try to stop worrying, just take it one day at a > time. You know it will all work out. > > > 18's, > > > Marty > > > On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope > <cmlhope@googlegroups.com> wrote: > > > To all of my CML friends and care givers. > > I took a flight to Chicago Dec. 6th to see my cancer Doctor get blood > work. A week later she called me to tell me that my Hemoglobin was down to > 10.7 and the norm is 13.0 - 17.5. My Hematocrit was 32.1% and the norm is > 38.0 - 50 %. > She wants me to get a Bone Marrow test here in Florida because the airfare > to Chicago would be $601.00. That's not going to happen. I'm also taking > Folic acid for the last 6 months (1mg). Folate is 16.7 >=5.9. > > She sent my other cancer Doctor down here a fax as to what she wants. I > have and appointment set for Jan. 2 and talk to him about what to do. (I'm > worried). She made a note to him that I also have CRI which may be > Contributory. > > So back in 2010 my counts on these two item were Hemoglobin 13.3 and > Hematocrit was 39.0. > > So back in 2015 my counts on these two items were Hemoglobin 12.0 and > Hematocrit was 36.1. So the counts are coming down and I think it's from > the > Gleevec. > > My white count is find at 5.8). Iron was 88 (50-212), Iron binding > capacity was 281 (250 - 450). > > So anyone that may have some answers that may make me feel better just hop > right it and I will very happy to hear from you. > > ALSO, I don't know now to do it but AOL is no longer going to be as of Jan > 15. My new email address is (myvet...@comcast.net) and it's free for me > and much better. > > Any feedback would be deeply appreciated. > > Thank you all and have a Very Happy and Safe Holiday. > > Greenie for South Fort Myers, FL. > > > -- > -- > [CMLHope] > A support group of _http://cmlhope.com_ (http://cmlhope.com/) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > CMLHope-unsubscribe@CMLHope-unsubscr > For more options, visit this group at > _http://groups.google.com/http://groups_ (http://groups.google.com/ > group/CMLHope) > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscribe@cmlhope+unsubscr. > For more options, visit _https://groups.google.com/d/https:_ > (https://groups.google.com/d/optout) . > > > > > -- > -- > [CMLHope] > A support group of _http://cmlhope.com_ (http://cmlhope.com/) > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > Marty Gartenberg <wa2...@gmail.com>: Dec 21 06:56PM -0500 > > Listen Greenie, > > This is what i do because of a promise that i once made to GOD. Let me tell > you about this. > When i was about to receive my total body radiation almost 30 years ago, > > just before they were about to close and lock that radiation chamber door > i got down on my knees clasped my hands in front of me and prayed to GOD > asking HIM if he would spare me i would help people that were in my > situation that i would try to help them. So far i have helped 1,286 people > in the past 30 years, and wrote my journal about each and every one of > them. This will never be published because of confidentiality reasons, but > on occasion i will send some of them parts of my book in order to try and > help them. > > Listen i am no saint just a plain human being but someone that once made a > promise to GOD and i am still here after many many death defying things > that i have gone trough. And that is why i do what i promised to do. I hope > that you understand why i do what i do... > > There is also why i write 18's when ever i end any posts that i make, > because that is what i believe. 18's to me represents LIFE. > > If you care to send me your personal email address i would like to send you > something. Mine is wa2yyx@gmail,com > > 18's, > > Marty > > On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope < > Back to top <#m_8872065407184338956_digest_top> > You received this digest because you're subscribed to updates for this > group. You can change your settings on the group membership page > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/join> > . > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+unsubscr...@googlegroups.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
