I was in Gleevec for 5 years when it quit working. Never put me in remission. Then was on tasigna for a few months. Quit on me also. Went on Sprycel and was in remission quickly. Went out if remission on Sprycel and started ponatinib in Jan if this year. Good luck.
My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Nov 4, 2015, at 8:31 PM, 'BOOGIE_WOOGIE' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Hello all.......I started on Gleevec it worked for 12 years then it stopped > so am on Sprycel > now. I buy insurance through my employer Wal Mart and get co-pay assistance > occasionaly. > > I am looking forward to turning 65 and getting medicare in two years.....if > you have any advice on supplamental ins. please pass it along. I am barely > making it through the work day now...Wal Mart now requires you to work an > average of 30 hours a week to be ab le to purchase ins. from them. Yes, > things are changing everywhere..... > > Penny > boogie_woo...@yahoo.com > > > BOOGIE WOOGIE > > > > On Monday, November 2, 2015 2:10 AM, "cmlhope@googlegroups.com" > <cmlhope@googlegroups.com> wrote: > > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > New Insurance - 4 Updates > New Insurance > perk <perkuss...@msn.com>: Nov 01 12:04PM -0800 > > My wife and I have insurance through the Healthcare Marketplace (Obama > care) where they pay most of the premium amount. Without any notification, > they stopped paying and the insurance company dropped us, even though I > paid our amount. My wife found out by trying to have a prescription > refilled and told at the pharmacy that we had no insurance. I take 70 MG of > Sprycel and the cost for a 30 day supply is $7000.00 without insurance. I > got everything worked out with the Healthcare Marketplace and my insurance > carrier so we're good for now. > > I am suppose to go on Medicare soon and pay for a Part D plan to pay for > prescription medicine but the insurance only pays 75% of the cost. I don't > think I can pay 25% of $7000.00 every month. Any advice on this matter will > be greatly appreciated. > > I wish I could stay on the Obama care plan I have now, as it has been > affordable for my wife and I. Marco Rubio was on TV this morning saying if > he were elected president, he would repeal Obama care. Many GOP > presidential hopefuls have said the same thing. I know the plan is not > perfect but it has worked well for my wife and I for the last 2 years and > made it affordable to purchase a Tier 5 drug. > > James in Texas > > On Friday, October 30, 2015 at 6:16:02 PM UTC-5, Suzieq wrote: > > Icandoallttc <icandoall...@aol.com>: Nov 01 03:20PM -0500 > > Hi James and I had the same problem a few years ago. There are organizations > that will help you pay the co pay. The leukemia society is one and others. > Good luck > > My Motto: Faith and Pills > Jeanie 🐟🐟18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > Icandoallttc <icandoall...@aol.com>: Nov 01 03:21PM -0500 > > I am on Medicare D and it's a great plan. > > My Motto: Faith and Pills > Jeanie 🐟🐟18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > Marty Gartenberg <wa2...@gmail.com>: Nov 01 09:03PM -0500 > > Hi James > > Don't bet your boots on anything to do with the Healthcare Marketplace > (Obama care) or Medicare. Now I am not being political but first you have > it and then it is gone and by the way I bet no one ever told you about it > being gone until..... > > I am on Medicare ever since I was afflicted with leukemia at the age of > only 45. I then had to wait another two years to be accepted onto Medicare. > We were really down to nothing left in our savings and many other things > that put us in dire straights. From being an Electrical Engineer to > nothing. We did everything in order to survive and through thick and thin. > > Years passed and we were able to continue with Medicare along with a > supplemental policy. Fine, everything was working fine then without any > notice and the powers to be decided to not pay anything for an in home picc > line especially if it had to be tendered by a home care nurse. Now this was > my second picc line. The first had to have an in line pump on it and of > course also tendered by a home care nurse. The first was paid by Medicare > and the 20% was paid by my supplemental policy. > > However for the second one since Medicare didn't pay anything then the > supplemental policy didn't pay anything either. Yes things have changed. > But also for some doctors that have always accepted Medicare. Two of my > doctors have given up their practice and decided to join a hospital rather > then with their practice. And you know things are about to get worse! All > of this isn't the worst of it, but I can go on and on. You just have to > learn what you can or can't do. > > I really wish you good luck. > > 18's, > > Marty > > Back to top > You received this digest because you're subscribed to updates for this group. > You can change your settings on the group membership page. > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+unsubscr...@googlegroups.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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