#31: data elements for ALS cohort characterization
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Reporter: dconnolly | Owner: jhe
Type: design-issue | Status: assigned
Priority: major | Milestone: survey-redcap-als
Component: data-stds | Resolution:
Keywords: als-cohort methods-core | Blocked By: 63
Blocking: |
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Comment (by dconnolly):
In section 5.0 Data management and case report forms of the protocol
(attached to #208):
The following EMR data will be included for analysis: age, gender, race,
ethnicity, living situation, occupation, and years of education.
I don't know where living situation, occupation, and years of education
are expected to come from. They're not on the current survey draft, and
they're not in any of the currently planned GPC ontologies.
In section 6.0 Biostatistical Approach: Outcome Measures, Data Analysis
and Power:
... Basic descriptive statistics will be used to describe the overall
ALS clinic cohort: including basic demographics (age, gender, race,
ethnicity, living situation, occupation, years of education) and
functional burden as identified by survey response (clinical diagnosis,
and functional status).
--
Ticket URL:
<http://informatics.gpcnetwork.org/trac/Project/ticket/31#comment:31>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
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