Wilton can reply (on list or privately to Larry) with the details, but IIRC the infusions helped him for a short time, then he had to wait several more short times after it wore off to get another treatment, and found no real relief until years later when he talked them into giving him frequent treatments.
Mitch. > On January 3, 2017 at 6:22 AM Larry Turner via Mercedes > <mercedes@okiebenz.com> wrote: > > > Hey Wilton! > > I'm glad to hear the Immunoglobulin infusions are helpful. I had 3 > infusions when I was 1st diagnosed with CIDP and they were less and less > successful with each infusion. I guess everyone reacts differently to > the disease as well as the treatment? I continue to try to control the > pain which is only partly successful. > > Maybe I should get my neurologist to give me multiple infusions > like you get? I guess if that would help, maybe the infusions I rec'd > would have shown more promise? > > Have you heard of any other treatments? > > Take care - stay in touch - > > LarryT > > > On 01/03/2017 12:05 AM, G Mann via Mercedes wrote: > > Happy New Year Wilton ! > > > > Always great to see you. > > > > On Mon, Jan 2, 2017 at 7:33 PM, Dwight Giles via Mercedes < > > mercedes@okiebenz.com> wrote: > > > >> Happy new year to you, Wilton > >> > >> Dwight Giles Jr. > >> 1982 300CD > >> 2005 E320 4 matic > >> Wickford RI > >> > >> On Jan 2, 2017 9:02 PM, "WILTON via Mercedes" <mercedes@okiebenz.com> > >> wrote: > >> > >>> Yep; 'been lurking. > >>> > >>> Indeed, I don't enjoy driving the 320CDI as much as I did my 126 & 124. > >>> I'm still even a little nervous driving, too, since the accident. 'Never > >>> had that problem before, neither driving nor flying. 'Don't know how I > >>> could have been driving any more carefully leading up to the accident, > >> but > >>> a damned fool ran a red light and hit me, anyway. > >>> > >>> The 320CDI does drive and ride mighty good, though, and has an excess of > >>> power - almost scary. > >>> > >>> BTW, that's CIDP - chronic inflammatory demyelinating polyneuropathy. > >>> > >>> Enjoyed short phone conversation with Craig. Thanks, Craig. > >>> > >>> Yep, I'll even see if there's a Sondy Tale I've not yet posted. > >>> > >>> Happy new year! > >>> > >>> Wilton > >>> > >>> ----- Original Message ----- From: "Craig via Mercedes" < > >>> mercedes@okiebenz.com> > >>> To: "Mercedes Discussion List" <mercedes@okiebenz.com> > >>> Cc: "Craig" <diese...@pisquared.net> > >>> Sent: Monday, January 02, 2017 8:24 PM > >>> Subject: Re: [MBZ] Wilton? > >>> > >>> > >>> On Mon, 2 Jan 2017 11:16:30 -0600 "Kaleb C. Striplin via Mercedes" > >>>> <mercedes@okiebenz.com> wrote: > >>>> > >>>> Now that I think about it, I don't recalling seeing Wilton around > >>>>> lately. Or did I just miss him? > >>>>> > >>>> I just called him. > >>>> > >>>> He said things are continuing on the same, with him having > >> immunoglobulin > >>>> infusions every two weeks to control his CIPD. > >>>> > >>>> He said his CDI is running well and doesn't have the typical 123, 124, > >>>> and 126 problems to take care of, so he has been lurking. > >>>> > >>>> I suggested he might post another Sondy tale. He said he would think > >>>> about that and that he could pass out a few ATTABOYs, too. > >>>> > >>>> He said he didn't like all the computer stuff in the CDI and much > >>>> preferred driving his W124 when he had it before it got wrecked. > >>>> > >>>> > >>>> Craig > >>>> > >>>> _______________________________________ > >>>> http://www.okiebenz.com > >>>> > >>>> To search list archives http://www.okiebenz.com/archive/ > >>>> > >>>> To Unsubscribe or change delivery options go to: > >>>> http://mail.okiebenz.com/mailman/listinfo/mercedes_okiebenz.com > >>>> > >>>> > >>> _______________________________________ > >>> http://www.okiebenz.com > >>> > >>> To search list archives http://www.okiebenz.com/archive/ > >>> > >>> To Unsubscribe or change delivery options go to: > >>> http://mail.okiebenz.com/mailman/listinfo/mercedes_okiebenz.com > >>> > >>> > >> _______________________________________ > >> http://www.okiebenz.com > >> > >> To search list archives http://www.okiebenz.com/archive/ > >> > >> To Unsubscribe or change delivery options go to: > >> http://mail.okiebenz.com/mailman/listinfo/mercedes_okiebenz.com > >> > >> > > _______________________________________ > > http://www.okiebenz.com > > > > To search list archives http://www.okiebenz.com/archive/ > > > > To Unsubscribe or change delivery options go to: > > http://mail.okiebenz.com/mailman/listinfo/mercedes_okiebenz.com > > > > > > _______________________________________ > http://www.okiebenz.com > > To search list archives http://www.okiebenz.com/archive/ > > To Unsubscribe or change delivery options go to: > http://mail.okiebenz.com/mailman/listinfo/mercedes_okiebenz.com > _______________________________________ http://www.okiebenz.com To search list archives http://www.okiebenz.com/archive/ To Unsubscribe or change delivery options go to: http://mail.okiebenz.com/mailman/listinfo/mercedes_okiebenz.com
