Lets be clear. Each record of a patient is a unique traversal of the health and care system over time and therefor very much identifying the patient.
What we talk about is: the right to be forgotten and the circumstance that after a legal period the medical data must be destroyed in some countries. The EHR 13606 is designed based on a set of medical-legal requirements. I’m of the opinion that that set does not need an update because of the new privacy law. When I’m mistaken I would like to be pointed at those missing requirements. Gerard Freriks +31 620347088 gf...@luna.nl Kattensingel 20 2801 CA Gouda the Netherlands > On 5 Sep 2018, at 17:12, Bert Verhees <bert.verh...@rosa.nl> wrote: > > On 05-09-18 11:15, GF wrote: >> Thomas, >> >> The record can stay where it was. >> Only the connection of identifying patient data and the Record-ID needs to >> be encrypted. >> De-encryption can take place using a key owned and provided by a notary >> public. > > I don't think that is enough, Gerard, if the record contains DNA material, or > other identifying material. > > A 1997 study showed that up to 87% of the U.S. population could be identify > with just zip code, birthdate and gender. > A researcher was able to identify William Weld (Massachusetts Gov.) from > anonymous hospital discharge records. > > Today this numbers will be much higher because clinical actions will be on > cell-phones and internet-browsers, and there is much more linked-information > about individuals. > > Read this, very interesting: > > https://www.forbes.com/sites/adamtanner/2013/04/25/harvard-professor-re-identifies-anonymous-volunteers-in-dna-study/#41635a6892c9 > > <https://www.forbes.com/sites/adamtanner/2013/04/25/harvard-professor-re-identifies-anonymous-volunteers-in-dna-study/#41635a6892c9> > > An organization which has no business with your medical data should not have > access to them, not even historical clinical data. > GDPR, were we all talk about, which is the thread of this message, is mainly > build around consent, but what is consent? > > There should be more discussion about to get the understanding landing at > normal people: > Click on the image, I found yesterday, to see more images: > https://twitter.com/ianmthompson/status/1037276071002038272 > <https://twitter.com/ianmthompson/status/1037276071002038272> > > Bert
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