Pain has been a major topic on the list and also a concern to my doctors. I am very fortunate for their concern because for years, and for many others with a spinal injury, our pain is simply dismissed. Of topic on the Q-List is also longevity which brings me to my topic. My doctor has ordered an MRI for my spine. Apparently the spinal column is susceptible to change throughout the years after a spinal injury. Many of these changes are pain related.
Perhaps my pain is of concern because by reducing it my night time AD is also controlled. Something some place is askew. Along with Percaset, I have just been given Fentanyl patches which release paim med over time transdermal. I like this. Merrill 18 years post C5 Injury _____ From: John S. [mailto:[email protected]] Sent: Friday, April 17, 2009 10:17 AM To: [email protected] Subject: Re: [QUAD-L] strange pains After 33 years, I have almost constant pain. No tingling or pins and needles. It is sharp pains that shoot through my back and a constant crushing pain. You may not have developed a syrinx until the past few years. Virtually all quads seem to have a syrinx. It creates pain by disrupting the flow of spinal fluid. If the syrinx moves, it causes increased pain. If you start to loose more function, the syrinx may be expanding upward on your spinal cord and that is when you need to check it. Someone put Mandelamine in a pill with vitamin C and it is marketed as UTI CLEAR? Why didn't I think of that? I'm surprized it doesn't include probiotics to fight infections that are driven by anti-biotic overkill of good bacteria. A lkot of pain meds destroy good bacteria as well. I just use Bifordopholus and acidopholus, but more complex bacteria can be purchased at health food stores. The good bacteria will not only stop you from getting constipated or diarrhea, but it becomes the dominant colony and keeps bad bacteria in check. It never occured to me that people would take Mandelamine and not vitamin C. The C creates an acidic environment and causes mandelamine to turn into formaldehyde. It makes it very difficult for bacteria to survive in the bladder. If you keep testing the Ph level of the urine, you can keep it working very well. john _____ From: RONALD L PRACHT <[email protected]> To: [email protected] Sent: Friday, April 17, 2009 2:12:09 AM Subject: Re: [QUAD-L] strange pains Well Dan, I wouuld suspect the syrinx as the possible cause. Most spinal injuries have some tingling sensations but they dont start 11 yrs post. When you get your bladder situation straight I would get that syrinx checked with a closed mri and looked at by at least one neuro. You might have to investigate getting to craig hospital if you find the syrinx has grown consideribly. ron c7 --- On Thu, 4/16/09, Danny Hearn <[email protected]> wrote: From: Danny Hearn <[email protected]> Subject: [QUAD-L] strange pains To: [email protected] Date: Thursday, April 16, 2009, 11:11 AM HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-----IT HAPPENS A LOT WHEN I SLEEP OR WHEN I'M UP IN MY CHAIR-----ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE OFF IN MY CHAIR----------- TO DESCRIBE IT IS LIKE THIS..........MY HANDS FEET LEGS , BACK BECOME VERY PAINFULL AND TINGELY----( SUCH AS WHEN A PERSONS HANDS OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS......IT IS VERY PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING. HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS??? THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
