After 33 years, I have almost constant pain. No tingling or pins and needles.
It is sharp pains that shoot through my back and a constant crushing pain. You
may not have developed a syrinx until the past few years. Virtually all quads
seem to have a syrinx. It creates pain by disrupting the flow of spinal fluid.
If the syrinx moves, it causes increased pain. If you start to loose more
function, the syrinx may be expanding upward on your spinal cord and that is
when you need to check it.
Someone put Mandelamine in a pill with vitamin C and it is marketed as UTI
CLEAR? Why didn't I think of that? I'm surprized it doesn't include probiotics
to fight infections that are driven by anti-biotic overkill of good bacteria. A
lkot of pain meds destroy good bacteria as well. I just use Bifordopholus and
acidopholus, but more complex bacteria can be purchased at health food stores.
The good bacteria will not only stop you from getting constipated or diarrhea,
but it becomes the dominant colony and keeps bad bacteria in check.
It never occured to me that people would take Mandelamine and not vitamin C.
The C creates an acidic environment and causes mandelamine to turn into
formaldehyde. It makes it very difficult for bacteria to survive in the
bladder. If you keep testing the Ph level of the urine, you can keep it working
very well.
john
________________________________
From: RONALD L PRACHT <r.pra...@sbcglobal.net>
To: quad-list@eskimo.com
Sent: Friday, April 17, 2009 2:12:09 AM
Subject: Re: [QUAD-L] strange pains
Well Dan,
I wouuld suspect the syrinx as the possible cause. Most spinal injuries
have some tingling sensations but they dont start 11 yrs post. When you get
your bladder situation straight I would get that syrinx checked with a closed
mri and looked at by at least one neuro. You might have to investigate getting
to craig hospital if you find the syrinx has grown consideribly.
ron c7
--- On Thu, 4/16/09, Danny Hearn <ddh...@sbcglobal.net> wrote:
From: Danny Hearn <ddh...@sbcglobal.net>
Subject: [QUAD-L] strange pains
To: quad-list@eskimo.com
Date: Thursday, April 16, 2009, 11:11 AM
HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-----IT HAPPENS A LOT WHEN I
SLEEP OR WHEN I'M UP IN MY CHAIR-----ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE
OFF IN MY CHAIR----------- TO DESCRIBE IT IS LIKE THIS..........MY HANDS FEET
LEGS , BACK BECOME VERY PAINFULL AND TINGELY----( SUCH AS WHEN A PERSONS HANDS
OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR
PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS......IT IS VERY
PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY
TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY
OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S
QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING.
HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS???
THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
