thanks- Merrill, do you have any idea's on lowering bladder bug count?  i know 
drinking lots of fluids and water help.......I may have my wife flush my 
bladder soon also, as that seem's to help some. i'm like you and have a 
supra-pubic.      Dan H.

--- On Thu, 4/16/09, Merrill <[email protected]> wrote:

From: Merrill <[email protected]>
Subject: FW: [QUAD-L] strange pains
To: [email protected]
Date: Thursday, April 16, 2009, 11:33 AM








If your bladder is cultivating bugs your pain as described will increase as 
will spasms.  There are ways to lower the bug count in the bladder other than 
anti-biotics.  I went from two infections every three months to one in a year 
or two by getting a supra-pubic.  The sympathetic nerve pain you described in 
arms is horrendous but drugs do help me also.  I am having an undiagnosed 
problem going on which I believe to be urinary related.
 




From: [email protected] [mailto:[email protected]] 
Sent: Thursday, April 16, 2009 9:15 AM
To: [email protected]; [email protected]
Subject: Re: [QUAD-L] strange pains
 

I would cautiously suggest that you notify your primary doctor and tell him 
what you are doing with the meds.  Taking such powerful drugs to mask the pain 
may not be the best thing.  Call your doctor first.

 

Best Wishes

 


In a message dated 4/16/2009 11:12:13 A.M. Central Daylight Time, 
[email protected] writes:






HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-----IT HAPPENS A LOT WHEN I 
SLEEP OR WHEN I'M UP IN MY CHAIR-----ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE 
OFF IN MY CHAIR----------- TO DESCRIBE IT IS LIKE THIS..........MY  HANDS FEET 
LEGS , BACK BECOME VERY PAINFULL AND TINGELY----( SUCH AS WHEN A PERSONS HANDS 
OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR 
PARALASIS. )  IT IS HAPPENING TO ME MORE OFTEN THESE DAYS......IT IS VERY 
PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY 
TAKING PAIN MEDS SUCH AS VICODEN.  I KNOW THAT I HAVE A SYRINX...SUCH AS MANY 
OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S 
QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING.   
HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS???   

 THANKS, DAN H. 11.6 YEARS POST  ST. LOUIS , MO. AREA.
 



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